CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22474 Medical history cerebrospinal fluid leak intracranial hypotension indicator

The indicator relating to any medical history of leak of cerebrospinal fluid (CSF) and/or intracranial hypotension

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core Demographics False Chiari I Malformation Chiari I Malformation
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Chiari I Malformation Chiari I Malformation
C22452 Klippel Feil Anomaly diagnosis indicator

The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C21729 Imaging cerebellar tonsil right position measurement

The measurement related to right tonsillar position relative to foramen magnum

 Core Chiari I Malformation Imaging False Chiari I Malformation Chiari I Malformation
C22403 Cutaneous stigmata occult tethered spinal cord hair tuft indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for hair tuft

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C22466 Medical history infectious disease central nervous system implication indicator

The indicator related to the history of an infectious disease with central nervous system (CNS) implications

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Chiari I Malformation Chiari I Malformation
C22205 Cough cry laugh sneeze pain worse indicator

The indicator related to pain worsened by coughing, crying, laughing, sneezing, orgasms, bowel movements

 Core Self - Report Testing (On Intake) False Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Chiari I Malformation Chiari I Malformation
C19877 Medical history depression since last visit indicator

Indicator of depression since last study visit

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C21730 Imaging cerebellar tonsil left position measurement

The measurement related to left tonsillar position relative to foramen magnum

 Core Chiari I Malformation Imaging False Chiari I Malformation Chiari I Malformation
C22404 Cutaneous stigmata occult tethered spinal cord dimple indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C22476 Spinal cord tethered none indicator

The indicator related to not having the condition of tethered spinal cord (low lying conus medullaris)

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Chiari I Malformation Chiari I Malformation
C22429 Motor vehicle accident injury indicator

The indicator relating to any previous or current injuries due to a motor vehicle accident (MVA)

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C22405 Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core General Core False Chiari I Malformation Chiari I Malformation
C22447 Hydrocephalus family history untreated indicator

The indicator related to any personal or immediate family history of untreated hydrocephalus

 Core Co-Morbidities False Chiari I Malformation Chiari I Malformation
C22326 Reflex pyramidal frontal release sign foot grasp status

The response status as related to pyramidal/frontal release sign foot grasp reflex

 Exploratory Reflex Testing False Chiari I Malformation Chiari I Malformation
C22422 Gestation breech indicator

The indicator related to a breech gestation

 Exploratory Co-Morbidities False Chiari I Malformation Chiari I Malformation
C22552 Symptom sensory deficit pre surgical procedure score

Score related to the symptom scale of the subject's sensory deficit pre-surgery

 Exploratory Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C21756 Imaging other incidental finding text

The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke)

 Exploratory Chiari I Malformation Imaging False Chiari I Malformation Chiari I Malformation
C22560 Symptom cranial nerve surgical procedure change score

Score related to the change in the subject's cranial nerves scores

 Exploratory Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
Displaying 26 - 50 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.