CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21748 Imaging posterior cranial fossa foramen magnum diameter measurement

The measurement as related to distance from basion to opisthion

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22544 Shunt valve scan type

Shunt valve scan type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21766 Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator

The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22179 Chiari malformation neurological examination attention short-term memory intact indicator

The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21758 Normocephalic assessment indicator

The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55660 Cervical compression surgical site status

The status of compression at the surgical site

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22422 Gestation breech indicator

The indicator related to a breech gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22324 Chiari malformation bowel bladder onset important symptom scale

The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22552 Symptom sensory deficit pre surgical procedure score

Score related to the symptom scale of the subject's sensory deficit pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22318 Reflex pyramidal frontal release sign Hoffman status

The response status as related to pyramidal/frontal release sign hoffman reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21756 Imaging other incidental finding text

The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke)

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22265 Spine range of motion trunk forward flexion position anatomic site

The anatomic site relating to the position of range of motion of trunk forward flexion in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22187 Chiari malformation I neurological examination nystagmus absent indicator

The indicator related to not having nystagmus

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21779 Abdomen soft non tender text

The free text field related to identifying a soft and non-tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22430 Brain injury unspecified indicator

The indicator relating to any unspecified brain injuries the subject has had

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22345 Chiari malformation brain fog onset symptom severity scale

The scale as related to brain fog at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22560 Symptom cranial nerve surgical procedure change score

Score related to the change in the subject's cranial nerves scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22367 Reflex autonomic reflex cold pressor test status

The response status as related to autonomic reflexes cold pressor test status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22236 Headaches factor aggravate type

The type related to what aggravates the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22376 Tonsil lowest position measurement

Measurement of the lowest position of the patient's tonsils

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21790 Headache frequency type

The rate at which a headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22204 Chiari malformation neurological examination gait station normal indicator

The indicator related to gait and station being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21796 Limb length discrepancy absent indicator

The indicator related to limb length discrepancy absence

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22568 Surgical procedure complication transdermal cerebrospinal fluid leak etiology type

Type related to the etiology of the trans-dermal cerebrospinal fluid (CSF) leak, if present

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21887 Injury whiplash indicator

The indicator relating to injury in the form of whiplash

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 201 - 225 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.