CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22377	C22377	Tonsil right cerebellar measurement	Measurement related to the lowest position of the patient's right cerebellar tonsil	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22301	C22301	Reflex pyramidal frontal release sign snout status	The response status as related to pyramidal/frontal release sign snout reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2154-C22209	C22209	Chiari malformation neurological examination muscle strength bulk intact indicator	The indicator related to muscle strength and bulk being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22569	C22569	Surgical procedure complication infection indicator	Indicator relating to the complication of infection	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22399	C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22245	C22245	Surgical procedure hardware anatomic site other text	The free-text field related to other anatomic site of hardware in surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22398	C22398	Cerebrospinal fluid ventral space change measurement	Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21733	C21733	Imaging syrinx length spinal segment count	The number of spinal segments for length of syrinx as measure on sagittal MRI scan	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22523	C22523	Shunt valve manufacturer other text	The free-text related to shunt valve manufacturer; specifying other text	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2154-C22219	C22219	Chiari malformation neurological examination sensation intact indicator	The indicator related to sensation being intact to touch, vibration, position sense, pin and temperature	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2153-C22041	C22041	Motor strength testing left quadricep scale	The amount of movement in the left quadricep	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22577	C22577	Parenchymal morphology post surgical procedure brainstem change measurement	Measurement of the change in the patient's brainstem shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22407	C22407	Cutaneous stigmata occult thread spinal cord appendage indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22520	C22520	Parenchymal morphology post surgical procedure tonsil shape type	Type of the shape of the patient's cerebellar tonsils post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21741	C21741	Imaging posterior cranial fossa basion axial interval extension measurement	The measurement as related to distance from tip of basion to posterior axial line while in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22537	C22537	Shunt valve reservoir refill sit not collect reason	Reason the time to refill after compression with the subject/participant sitting down was not collected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2183-C22494	C22494	Ventral decompression type	The type of ventral decompression utilitized (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56988	C56988	Lumbar posture type	Type of lumbar posture	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22457	C22457	Labor duration	The duration of the mother's labor, in hours	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22389	C22389	Chiari malformation tethered spinal cord low back leg pain urinary symptom stair walk indicator	The indicator related to low back pain, leg pain, or urinary symptoms while walking up stairs	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2142-C21700	C21700	Coordination gait assessment scale	The scale related to assessment of manner of person's walking	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2148-C21786	C21786	Headache combination quality type	The quality of the patient's headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2156-C22760	C22760	Word selection anomia indicator	Indicator of whether the patient/participant is experiencing or exhibits problems with recalling words	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2138-C21673	C21673	Allergy medication antibiotic reaction type	Type related to allergic reaction to antibiotic medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.