CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 101 - 125 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2151-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22380	C22380	Chiari malformation tethered spinal cord past urodynamic test indicator	The indicator related to past urodynamic testing	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22208	C22208	Stiffness pain general indicator	The indicator related to general neck pain/stiffness	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21713	C21713	Swallow function problem type	Type as related to problem with function of swallowing	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22493	C22493	Chiari decompression hospital stay post surgical procedure duration	The duration of the individual's hospital stay post operation	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56987	C56987	Trigger point rhomboid type	Type of rhomboid trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22757	C22757	Short-term memory loss indicator	Indicator of whether the patient/participant is experiencing a loss of short-term memory	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22456	C22456	Pregnancy miscarriage medical termination still birth count	The count related to the number of abortions, miscarriages, and/or still births the mother has had	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2151-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22388	C22388	Chiari malformation tethered spinal cord knee bent sleep back pain indicator	The indicator related to knees bent at night to relieve back or leg discomfort	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22717	C22717	Stand unsteady indicator	Indicator of whether the patient/participant feels unsteady when standing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21722	C21722	Oculomotor saccadic pursuit assessment indicator	Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C21869	C21869	Medical history coronary artery disease indicator	The indicator related to personal medical history of coronary artery disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2183-C22501	C22501	Cranioplasty cerebelloplasty performed six month plus type	The type of cranioplasty/cerebelloplasty perfomed at 6 months plus post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56995	C56995	Sacroiliac joint dysfunction palpitation pain type	Type of palpitation in sacroiliac joint dysfunction pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22765	C22765	Thyroid problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a thyroid problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22470	C22470	Diamond blackfan anemia disorder indicator	The indicator related to the presence of the disorder Diamond-Blackfan anemia (DBA), in which the bone marrow malfunctions and fails to produce enough red blood cells	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22725	C22725	Vocal hoarseness increase indicator	Indicator of whether the patient/participant has experienced an increase in vocal hoarseness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21693	C21693	Chiari I malformation position change dizzy symptom indicator	The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2149-C21877	C21877	Surgical history defibrillator indicator	The indicator related to surgical history of using a defibrillator	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22360	C22360	Assessment post surgical procedure date	Date related to post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.