CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 801 - 825 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2148-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F0001-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Chiari I Malformation	Chiari I Malformation
F2158-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2156-C01052	C01052	Loss of consciousness indicator	The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2145-C10515	C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F0016-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2149-C13758	C13758	Imaging diagnosis stroke transient ischemic attack indicator	Indicator of the diagnosis of stroke/transient ischemic attack (TIA) for imaging positive	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2156-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C08007	C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2165-C10709	C10709	Walking assistive device indicator	Indicator of whether the participant/subject uses an assistive device for walking	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2149-C17460	C17460	Cancer history indicator	Indicator as to whether the participant/subject has or had cancer	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C13523	C13523	Dizziness or vertigo indicator	Indicator of whether the participant/subject experienced dizziness or vertigo	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2165-C17402	C17402	Site name	The name of the site for the study	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2149-C18150	C18150	Thyroid disease indicator	Indicator for thyroid disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2182-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2155-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation

Displaying 801 - 825 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.