CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 726 - 750 of 855

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2183-C22508	C22508	Spinal deformity stabilization text	The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2272-C55641	C55641	Neck Disability Index - Concentration	The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21706	C21706	Coordination finger to nose left upper extremity assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2182-C22477	C22477	Family history allergy multiple mast cell disease activation disorder indicator	The indicator relating to personal or family history of allergy or multiple sensitivities, Mast Cell Disease, or Mast Cell Activation Disorder	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22402	C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22274	C22274	Surgical procedure type	The type of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2138-C21679	C21679	Allergy reaction plastic tape indicator	Indicator related to allergic reaction to plastic tape	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2156-C22759	C22759	Indecisiveness indicator	Indicator of whether the patient/participant is experiencing or exhibits difficulty making decisions	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2172-C21736	C21736	Imaging syrinx width measurement	Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2151-C22107	C22107	Modified Ashworth Scale - Limb tone testing left ankle scale	The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22529	C22529	Shunt valve surgical implantation date	Date of surgical implantation	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2156-C22719	C22719	Tinnitus indicator	Indicator of whether the patient/participant has tinnitus or a high-pitched ringing in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21871	C21871	Medical history chronic obstructive pulmonary disease indicator	The indicator related to personal medical history of chronic obstructive pulmonary disease (COPD)	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2144-C21727	C21727	Lansky modified performance status score	Score that best identifies your child's current level of functioning favoring the highest level estimate	Supplemental	Functional Status Lansky Score	False	Chiari I Malformation	Chiari I Malformation
F2183-C22460	C22460	Suboccipital craniectomy size left right measurement range	The range of measurement related to the size of the suboccipital craniectomy left or right	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C22410	C22410	Skin abnormality hyperextensiblilty indicator	The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56970	C56970	Muscle spasm type	Type of muscle spasm	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22290	C22290	Chiari malformation information source	The source that provided information about Chiari Malformation to the patient	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2139-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2182-C22439	C22439	Head shape dolichocephaly indicator	The indicator related to head shape dolicocephaly, in which the subject's head is longer that would be expected, relative to its width	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22767	C22767	Bleeding clotting disorder indicator	Indicator of whether the patient/participant has ever had a bleeding or blood clotting disorder	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2172-C21744	C21744	Imaging posterior cranial fossa basion dens interval extension measurement	The measurement as related to distance from basion to tip of odontoid in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22540	C22540	Shunt valve reservoir resistance type	Resistance to reservoir compression	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2156-C22727	C22727	Breath shortness indicator	Indicator of whether the patient/participant has experienced shortness of breath	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21880	C21880	Surgical history valve replacement indicator	The indicator related to surgical history of valve replacement	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation

Displaying 726 - 750 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.