CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2154-C22216	C22216	Chiari malformation neurological examination tone normal indicator	The indicator related to tone being normal, no abnormal movements or tremors are noted	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21732	C21732	Imaging syrinx present indicator	The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging	Supplemental-Highly Recommended	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22512	C22512	Shunt function valve anatomic site type	Site/location	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22038	C22038	Motor strength testing left wrist flexion scale	The amount of movement in the flexion of the left wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22576	C22576	Parenchymal morphology post surgical procedure tonsil change measurement	Measurement related to the change in the patient's tonsil shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22406	C22406	Cutaneous stigmata occult tethered spinal cord lipoma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22519	C22519	Syrinx width change measurement	Measurement of the change in the maximum width of the patient's spinal syrinx after the operation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22250	C22250	Reflex deep tendon reflex biceps response score	The response score related to deep tendon reflex testing of biceps (musculocutaneous:c5-6)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21740	C21740	Imaging posterior cranial fossa basion axial interval measurement	The measurement as related to distance from tip of basion to posterior axial line	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22536	C22536	Shunt valve set type	setting type (confirmation, mechanical, electronic)	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C21689	C21689	Beighton Score - Total score	Total score as related to the Beighton Score	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2193-C55652	C55652	Eye visual fixation vertical upgaze type	The type as related to vertical upgaze in visual fixation	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22414	C22414	Osteoporosis osteopenia diagnosis indicator	The indicator relating to the diagnosis of osteoporosis and/or osteopenia based on DEXA measurement	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22307	C22307	Chiari malformation Neck pain onset important symptom scale	The scale as related to neck pain at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22533	C22533	Surgical procedure complication fluid collection indicator	Indicator related to the complication of a fluid collection within the brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22283	C22283	Reflex superficial reflex cremasteri response status	The response status of superficial reflex testing of cremasteric (ilioinguinal/genitofemoral: L1-L2)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21748	C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	The measurement as related to distance from basion to opisthion	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22544	C22544	Shunt valve scan type	Shunt valve scan type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21766	C21766	Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator	The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22179	C22179	Chiari malformation neurological examination attention short-term memory intact indicator	The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21758	C21758	Normocephalic assessment indicator	The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55660	C55660	Cervical compression surgical site status	The status of compression at the surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22422	C22422	Gestation breech indicator	The indicator related to a breech gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22324	C22324	Chiari malformation bowel bladder onset important symptom scale	The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.