CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2149-C21888	C21888	Injury fall head neck indicator	The indicator relating to injury in the form of the patient falling on their head or neck	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2273-C56956	C56956	Numerical Pain Rating Scale - Neck pain scale	The Numeric Scale - Neck Pain is a patient-reported outcome instrument used to assess neck pain in daily life	Supplemental	Numeric Rating Scale - Neck Pain	False	Chiari I Malformation	Chiari I Malformation
F2183-C22432	C22432	Chiari malformation conservative management indicator	The indicator related to conservative management with no surgical treatment offered	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2143-C21726	C21726	Karnofsky modified performance status score	Score identifying current level of functioning favoring the highest level estimate	Supplemental	Functional Status Karnofsky Score	False	Chiari I Malformation	Chiari I Malformation
F2194-C56967	C56967	Tinels sign positive side type	The side of the body that the participant/subject's Tinel's signs read positive	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22435	C22435	Medical history valvular stenosis indicator	The indicator related to any medical history of valvular stenosis, in which there is narrowing, stiffening, thickening, fusion, or blockage of one or more of the valves in the subject's heart	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2139-C21686	C21686	Beighton Score - Motion elbow hyperextend score	Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2153-C22033	C22033	Motor strength testing right gluteus scale	The amount of movement in the right gluteus	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22036	C22036	Motor strength testing right wrist flexion scale	The amount of movement in the flexion of the right wrist muscles	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22742	C22742	Excessive urination frequency indicator	Indicator of whether the patient/participant's urination frequency has been excessive	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2150-C21931	C21931	Dizziness motion related indicator	The indicator related to motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2164-C22366	C22366	Chiari malformation tethered spinal cord urine hold trouble indicator	The indicator related to trouble holding your urine	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C21693	C21693	Chiari I malformation position change dizzy symptom indicator	The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22468	C22468	Surgical procedure arachnoid manuever type	The type of surgical procedure performed on arachnoid	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56975	C56975	Adsons maneuver type	The type of Adson's maneuver seen in the participant/subject	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22444	C22444	Medical history correction bifid uvula abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's bifid uvula	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2140-C21717	C21717	Sleep disorder finding type	Type as related to sleep disorder	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2165-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22750	C22750	Celiac disease gluten sensitivity diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with celiac disease or gluten sensitivity	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22071	C22071	Modified Ashworth Scale - Limb tone testing right elbow scale	The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22381	C22381	Chiari malformation tethered spinal cord occasional fecal incontinence indicator	The indicator related to the occasional incontinence (in context of stool)	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22665	C22665	Medical history chronic constipation indicator	Indicator of whether the participant/subject has/had chronic constipation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22489	C22489	Dural additional closure agent type	The type of dural closure supplements used (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56983	C56983	Range of motion at hip internal side type	The hip that the participant/subject feels pain on during internal range of motion	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22452	C22452	Klippel Feil Anomaly diagnosis indicator	The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

Displaying 301 - 325 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.