CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2156-C22727	C22727	Breath shortness indicator	Indicator of whether the patient/participant has experienced shortness of breath	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21695	C21695	Chiari I malformation headache pressure eye ear light sensitive symptom indicator	The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2149-C21880	C21880	Surgical history valve replacement indicator	The indicator related to surgical history of valve replacement	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2190-C22362	C22362	Imaging post surgical procedure date	Date of post surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22264	C22264	Reflex deep tendon reflex patellar response score	The response score related to deep tendon reflex testing of patellar (femoral:l2-4)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55644	C55644	Neck Disability Index - sleeping indicator	The sleeping pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2157-C22220	C22220	Sensory lower extremity numbness tingling symptom indicator	The indicator related to numbness/tingling in the lower extremities	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2182-C22480	C22480	Spinal cord tethered myelomeningocele indicator	The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2153-C22026	C22026	Motor strength testing right deltoid scale	The amount of movement in the right deltoid muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22029	C22029	Motor strength testing left bicep scale	The amount of movement in the left bicep muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56965	C56965	Tinels sign type	The reading of the participant/subject's Tinel's signs	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22735	C22735	Balance difficulty absent visual cue indicator	Indicator of whether the patient/participant has experienced difficulty with balance in the absence of visual cues	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21703	C21703	Coordination Romberg maintain stance eye close assessment scale	The scale related to assessment of Romberg's test of neurological function of maintaining way of standing with eyes closed	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2149-C21889	C21889	Medical history claustrophobic indicator	The indicator relating to personal medical history of claustrophobia	Exploratory	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2138-C21676	C21676	Allergy medication reaction type	Type of allergic reaction to medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2190-C22392	C22392	Imaging pre surgical procedure anatomical site	Anatomical site of the pre-surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21834	C21834	Headache symptom association score	The score related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22209	C22209	Chiari malformation neurological examination muscle strength bulk intact indicator	The indicator related to muscle strength and bulk being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22774	C22774	Hoarseness assessment indicator	The indicator related to hoarseness which describes abnormal voice changes	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22571	C22571	Surgical procedure complication hematoma indicator	Indicator related to the complication of a hematoma	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22401	C22401	Spina bifida myelomeningocele diagnosis indicator	The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22254	C22254	Surgical procedure trigger point anatomic site	The anatomic site as related to trigger points in surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22514	C22514	Cerebrospinal fluid Magendie patency change measurement	Measurement related to the change in the patency of the foramen on Magendie	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22219	C22219	Chiari malformation neurological examination sensation intact indicator	The indicator related to sensation being intact to touch, vibration, position sense, pin and temperature	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.