CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2194-C56977	C56977	Trigger point type	Type of trigger points	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22446	C22446	Malar hypoplasia condition indicator	The indicator related to the condition of malar hypoplasia, in which the subject has an underdeveloped maxilla	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2139-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2153-C22029	C22029	Motor strength testing left bicep scale	The amount of movement in the left bicep muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22037	C22037	Motor strength testing gluteus left scale	The amount of movement in the left gluteus	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22743	C22743	Inability empty bladder single attempt indicator	Indicator of whether the patient/participant is unable to empty his or her bladder in a single urination attempt	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2164-C22369	C22369	Chiari malformation tethered spinal cord frequent urinate indicator	Indicator related to frequency of urination	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2183-C22491	C22491	Cranioplasty cerebelloplasty performed type	The type of cranioplasty/cerebelloplasty (if any) performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C21771	C21771	Chiari malformation screening wound prolong heal separation indicator	The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56985	C56985	Stair climbing difficulty type	The difficulty the participant/subject has when climbing stairs	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22454	C22454	Pseudotumor papilledema family history condition indicator	The indicator related to personal or family history of pseudotumors or papilledema	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2140-C21718	C21718	Cardiac arrhythmia finding text	The free-text field to explain the findings of the cardiac arrhythmia	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2150-C22015	C22015	Ocular movement disorder type	The type as related to ocular movement disorder	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2165-C22047	C22047	Motor strength testing right ankle df scale	The amount of movement in the right ankle df	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22751	C22751	Crohns disease colitis diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Crohn's disease or colitis	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2148-C21844	C21844	Headache assessment total score	The total score of headache assessment	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2164-C22382	C22382	Chiari malformation tethered spinal cord decrease pelvic sensation indicator	The indicator related to a decrease of sensation in the pelvic region	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2183-C22499	C22499	Hydrocephalus diagnosis required intervention six month indicator	The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22711	C22711	Pain pressure behind eyes indicator	Indicator of whether the patient/participant feels pressure or pain behind his or her eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22467	C22467	Medical history sarcoidosis condition indicator	The indicator related to medical history of the condition sarcoidosis, the growth of many tiny inflammatory cells throughout the body	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2141-C21690	C21690	Chiari I malformation headache pressure daily occurrence indicator	Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2151-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22071	C22071	Modified Ashworth Scale - Limb tone testing right elbow scale	The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22759	C22759	Indecisiveness indicator	Indicator of whether the patient/participant is experiencing or exhibits difficulty making decisions	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.