CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 101 - 125 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2272-C55642	C55642	Neck Disability Index - work indicator	The work pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55643	C55643	Neck Disability Index - driving indicator	The driving pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55639	C55639	Neck Disability Index - reading indicator	The pain indicator of reading as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55638	C55638	Neck Disability Index - lifting indicator	The pain indicator of lifting as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55637	C55637	Neck Disability Index - Personal care indicator	The pain indicator of personal care as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55627	C55627	Neck Disability Index (NDI) - Pain intensity type	The element related to the intensity of the participant/subject's pain as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55640	C55640	Neck Disability Index - headaches type	The element related to the type of headaches the participant/subject has as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55641	C55641	Neck Disability Index - Concentration	The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2146-C22775	C22775	Hereditary disorder connective tissue diagnosis type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2146-C22776	C22776	Hereditary disorder type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22759	C22759	Indecisiveness indicator	Indicator of whether the patient/participant is experiencing or exhibits difficulty making decisions	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22719	C22719	Tinnitus indicator	Indicator of whether the patient/participant has tinnitus or a high-pitched ringing in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22767	C22767	Bleeding clotting disorder indicator	Indicator of whether the patient/participant has ever had a bleeding or blood clotting disorder	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22727	C22727	Breath shortness indicator	Indicator of whether the patient/participant has experienced shortness of breath	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22735	C22735	Balance difficulty absent visual cue indicator	Indicator of whether the patient/participant has experienced difficulty with balance in the absence of visual cues	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22743	C22743	Inability empty bladder single attempt indicator	Indicator of whether the patient/participant is unable to empty his or her bladder in a single urination attempt	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22751	C22751	Crohns disease colitis diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Crohn's disease or colitis	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22711	C22711	Pain pressure behind eyes indicator	Indicator of whether the patient/participant feels pressure or pain behind his or her eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22712	C22712	Light sensitivity indicator	Indicator of whether the patient/participant is sensitive to light	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22760	C22760	Word selection anomia indicator	Indicator of whether the patient/participant is experiencing or exhibits problems with recalling words	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22720	C22720	Tremor indicator	Indicator of whether the patient/participant has tremors	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22768	C22768	Irregular menstrual period indicator	Indicator of whether the patient/participant has irregular menstrual periods	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22728	C22728	Frequent nausea indicator	Indicator of whether the patient/participant has experienced frequent nausea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22736	C22736	Extremity weakness indicator	Indicator of whether the patient/participant has experienced weakness of his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22744	C22744	Recurrent urinary tract infection indicator	Indicator of whether the patient/participant has a history of recurring urinary tract infections	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.