CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22481	C22481	Spinal cord tethered thick filum indicator	The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22476	C22476	Spinal cord tethered none indicator	The indicator related to not having the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22475	C22475	Medical history spinal stenosis indicator	The indicator related to any medical history of spinal stenosis in the subject, in which the subject's spine narrows	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22474	C22474	Medical history cerebrospinal fluid leak intracranial hypotension indicator	The indicator relating to any medical history of leak of cerebrospinal fluid (CSF) and/or intracranial hypotension	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22473	C22473	Anemia condition indicator	The indicator related to the blood condition anemia	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22472	C22472	Coagulopathy condition indicator	The indicator related to the condition coagulopathy, a condition in which the bloods ability to clot is impaired	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22471	C22471	Methylenetetrahydrofolate reductase genetic defect indicator	The indicator related to the absence of the methylenetetrahydrofolate reductase (MTHFR) gene, a gene essential in converting vitamin B9 into a usable form and the body's growth and metabolism	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22470	C22470	Diamond blackfan anemia disorder indicator	The indicator related to the presence of the disorder Diamond-Blackfan anemia (DBA), in which the bone marrow malfunctions and fails to produce enough red blood cells	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2183-C22468	C22468	Surgical procedure arachnoid manuever type	The type of surgical procedure performed on arachnoid	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C22469	C22469	Medical history tuberculosis condition indicator	The indicator related to medical history of the condition tuberculosis (TB)	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22467	C22467	Medical history sarcoidosis condition indicator	The indicator related to medical history of the condition sarcoidosis, the growth of many tiny inflammatory cells throughout the body	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22466	C22466	Medical history infectious disease central nervous system implication indicator	The indicator related to the history of an infectious disease with central nervous system (CNS) implications	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22465	C22465	Medical history cervical radiculopathy disc disease indicator	The indicator related to the history of cervical radiculopathy or disc disease	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2183-C22464	C22464	Surgical procedure dural technique type	The type of dural technique (surgical approach to the dura) used	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22463	C22463	Imaging intra-operative type	The type of intra-operative imaging utilized (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22462	C22462	Cervical laminotomy indicator	The indicator related to cervical laminotomy performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22461	C22461	Cervical laminectomy anatomic site	The anatomic site or location related to the cervical laminectomy	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22460	C22460	Suboccipital craniectomy size left right measurement range	The range of measurement related to the size of the suboccipital craniectomy left or right	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C22459	C22459	Medical history Menieres disease indicator	The indicator related to medical history of Meniere's disease, an inner ear disease that causes vertigo, hearing problems, and a ringing sound in the ear	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22458	C22458	Birth delivery anesthesia type	The type of anesthesia used to deliver the offspring	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22457	C22457	Labor duration	The duration of the mother's labor, in hours	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22456	C22456	Pregnancy miscarriage medical termination still birth count	The count related to the number of abortions, miscarriages, and/or still births the mother has had	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22455	C22455	Family history cranial synostosis condition type	The type related to personal or family history of the condition of cranial synostosis	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22454	C22454	Pseudotumor papilledema family history condition indicator	The indicator related to personal or family history of pseudotumors or papilledema	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22453	C22453	Medical history dysautonomia indicator	The indicator related to any reported history of POTS (postural orthostatic tachycardia syndrome), NMH (Neurally mediated Hypotension) or fainting	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.