CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2145-C21768	C21768	Carotid radial pulse intact indicator	The indicator related to an intact carotid and radial pulse	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2153-C22028	C22028	Motor strength testing right bicep scale	The amount of movement in the right bicep muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2150-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2156-C22755	C22755	Sexual dysfunction indicator	Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2193-C55658	C55658	Strabismus indicator	The indicator related to strabismu (esotropia/exotropia/skew deviation)	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22715	C22715	Visual field reduced look straight ahead indicator	Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21787	C21787	Scoliosis text	The free text field related to identifying scoliosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2153-C22036	C22036	Motor strength testing right wrist flexion scale	The amount of movement in the flexion of the right wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2150-C22013	C22013	Ataxia lower extremity indicator	The indicator related to lower extremities having ataxia	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2182-C22400	C22400	Spina bifida occulta diagnosis indicator	The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22723	C22723	Throat tight indicator	Indicator of whether the patient/participant has throat tightness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2148-C21834	C21834	Headache symptom association score	The score related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2172-C21734	C21734	Imaging syrinx highest level spinal segment number	The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2146-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22372	C22372	Imaging pre surgical procedure date	Date of pre-surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2153-C22043	C22043	Motor strength testing right hamstring scale	The amount of movement in the right hamstring	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22487	C22487	Obex plug indicator	The indicator related to the plugging of the obex	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22263	C22263	Spine range of motion trunk extension degree value	The value in degrees related to range in motion of trunk extension (30) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2142-C21712	C21712	Coordination total assessment score	Total score of the Coordination assessment scale	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2164-C22382	C22382	Chiari malformation tethered spinal cord decrease pelvic sensation indicator	The indicator related to a decrease of sensation in the pelvic region	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2155-C22270	C22270	Reflex deep tendon reflex adductor response score	The response score related to deep tendon reflex testing of adductor (obturator:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22343	C22343	Chiari malformation fatigue onset symptom severity scale	The scale as related to fatigue at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2153-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation

Displaying 176 - 200 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.