CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2183-C22437	C22437	Suboccipital craniectomy size superior inferior measurement	The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2138-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2152-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22320	C22320	Chiari malformation brain fog onset important symptom scale	The scale as related to brain fog at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2149-C21879	C21879	Surgical history prosthetic implantation indicator	The indicator related to surgical history of prosthetic implantation	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21707	C21707	Coordination finger to nose left upper extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2183-C22483	C22483	Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator	The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2145-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56977	C56977	Trigger point type	Type of trigger points	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2138-C21680	C21680	Allergy reaction latex indicator	Indicator related to allergic reaction to latex	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2153-C22025	C22025	Motor strength testing iliopsoas right scale	The amount of movement in the right iliopsoas	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22340	C22340	Chiari malformation auditory symptoms onset symptom severity scale	The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2160-C22230	C22230	Headache duration	The duration of the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2145-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22491	C22491	Cranioplasty cerebelloplasty performed type	The type of cranioplasty/cerebelloplasty (if any) performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2145-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56985	C56985	Stair climbing difficulty type	The difficulty the participant/subject has when climbing stairs	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22454	C22454	Pseudotumor papilledema family history condition indicator	The indicator related to personal or family history of pseudotumors or papilledema	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2153-C22033	C22033	Motor strength testing right gluteus scale	The amount of movement in the right gluteus	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2150-C21931	C21931	Dizziness motion related indicator	The indicator related to motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2161-C22239	C22239	Surgical procedure wound healing status	The status related to wound healing after surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2147-C21769	C21769	Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator	The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22499	C22499	Hydrocephalus diagnosis required intervention six month indicator	The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2158-C22510	C22510	Shunt valve present indicator	Valve present	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2145-C21763	C21763	Temporal artery tenderness absent assessment text	The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation

Displaying 151 - 175 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.