CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 801 - 825 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22436	C22436	Inferior vena caval pressure abnormality indicator	The indicator related to the presence of any abnormality in the value of the subject's inferior vena caval (IVC) pressure	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22040	C22040	Motor strength testing intrinsic right hand scale	The amount of movement in the intrinsic muscles of the right hand	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56976	C56976	Adsons maneuver internal side type	The side on which the participant/subject lost his/her pulse in internal rotation	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2182-C22445	C22445	Micrognathia condition indicator	The indicator related to the condition of micrognathia, in which the subject has a small receding jaw	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2148-C21844	C21844	Headache assessment total score	The total score of headache assessment	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2165-C22050	C22050	Motor strength testing left ankle pf scale	The amount of movement in the left ankle pf	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2165-C22101	C22101	Modified Ashworth Scale - Limb tone testing left wrist scale	The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56992	C56992	Toe walking weakness type	Type of toe walking weakness	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C19877	C19877	Medical history depression since last visit indicator	Indicator of depression since last study visit	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2172-C21730	C21730	Imaging cerebellar tonsil left position measurement	The measurement related to left tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22404	C22404	Cutaneous stigmata occult tethered spinal cord dimple indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22476	C22476	Spinal cord tethered none indicator	The indicator related to not having the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22429	C22429	Motor vehicle accident injury indicator	The indicator relating to any previous or current injuries due to a motor vehicle accident (MVA)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22405	C22405	Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2182-C22447	C22447	Hydrocephalus family history untreated indicator	The indicator related to any personal or immediate family history of untreated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2156-C22205	C22205	Cough cry laugh sneeze pain worse indicator	The indicator related to pain worsened by coughing, crying, laughing, sneezing, orgasms, bowel movements	Core	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22430	C22430	Brain injury unspecified indicator	The indicator relating to any unspecified brain injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C01058	C01058	Traumatic Brain Injury symptom indicator	Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22406	C22406	Cutaneous stigmata occult tethered spinal cord lipoma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

Displaying 801 - 825 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.