CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2165-C22099	C22099	Modified Ashworth Scale - Limb tone testing left elbow scale	The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21698	C21698	Chiari I malformation generalize weakness stiff arm leg symptom indicator	The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2182-C22426	C22426	Gestational diabetes condition indicator	The indicator related to the condition of gestational diabetes, which develops when women are not able to make enough insulin during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22556	C22556	Symptom weakness post surgical procedure score	Score related to the symptom scale of the subject's weakness post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21837	C21837	Headache duration type	The type as related to duration of headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2190-C22564	C22564	Symptom depression pre surgical procedure score	Score related to the symptom scale of the subject's depression pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22572	C22572	Surgical procedure complication hematoma type	Type of hematoma the subject has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22524	C22524	Surgical procedure complication pseudomeningocele type	Type of pseudomeningocele found in the patient's brain, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21744	C21744	Imaging posterior cranial fossa basion dens interval extension measurement	The measurement as related to distance from basion to tip of odontoid in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22418	C22418	Birth delivery forceps use indicator	The indicator related to birth presentation at delivery requiring the use of forceps	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22548	C22548	Symptom headache surgical procedure change score	Score related to the change in the subject's headache scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22298	C22298	Reflex pyramidal frontal release sign glabellar status	The response status as related to pyramidal/frontal release sign glabellar reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21752	C21752	Imaging spine anomaly atlas assimilation present indicator	The indicator related to the atlas assimilation on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C22031	C22031	Motor strength testing right triceps scale	The amount of movement in the right triceps muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56967	C56967	Tinels sign positive side type	The side of the body that the participant/subject's Tinel's signs read positive	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22435	C22435	Medical history valvular stenosis indicator	The indicator related to any medical history of valvular stenosis, in which there is narrowing, stiffening, thickening, fusion, or blockage of one or more of the valves in the subject's heart	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22039	C22039	Motor strength testing right quadricep scale	The amount of movement in the right quadricep	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56975	C56975	Adsons maneuver type	The type of Adson's maneuver seen in the participant/subject	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2140-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2148-C21843	C21843	Headache aggravating pain factor score	The score related to factor aggravating headache pain	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2165-C22049	C22049	Motor strength testing right ankle pf scale	The amount of movement in the right ankle pf	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2165-C22100	C22100	Modified Ashworth Scale - Limb tone testing right hip scale	The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56991	C56991	Toe walking type	Type of toe walking	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.