CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22439	C22439	Head shape dolichocephaly indicator	The indicator related to head shape dolicocephaly, in which the subject's head is longer that would be expected, relative to its width	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22243	C22243	Surgical procedure hardware anatomic site	The anatomic site related to hardware of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22397	C22397	Cerebrospinal fluid ventral space measurement	Measurement related to the minimal cerebrospinal fluid (CSF) space ventral to the spinal canal (SC) at the foramen magnum	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21839	C21839	Headache pain relief factor type	The type as related to pain relief factor for headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22216	C22216	Chiari malformation neurological examination tone normal indicator	The indicator related to tone being normal, no abnormal movements or tremors are noted	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C22512	C22512	Shunt function valve anatomic site type	Site/location	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C10724	C10724	Echocardiogram perform date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22038	C22038	Motor strength testing left wrist flexion scale	The amount of movement in the flexion of the left wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22576	C22576	Parenchymal morphology post surgical procedure tonsil change measurement	Measurement related to the change in the patient's tonsil shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2163-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22519	C22519	Syrinx width change measurement	Measurement of the change in the maximum width of the patient's spinal syrinx after the operation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22250	C22250	Reflex deep tendon reflex biceps response score	The response score related to deep tendon reflex testing of biceps (musculocutaneous:c5-6)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22536	C22536	Shunt valve set type	setting type (confirmation, mechanical, electronic)	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C10515	C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55652	C55652	Eye visual fixation vertical upgaze type	The type as related to vertical upgaze in visual fixation	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C22307	C22307	Chiari malformation Neck pain onset important symptom scale	The scale as related to neck pain at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22533	C22533	Surgical procedure complication fluid collection indicator	Indicator related to the complication of a fluid collection within the brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21748	C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	The measurement as related to distance from basion to opisthion	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22544	C22544	Shunt valve scan type	Shunt valve scan type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21766	C21766	Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator	The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22179	C22179	Chiari malformation neurological examination attention short-term memory intact indicator	The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21758	C21758	Normocephalic assessment indicator	The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55660	C55660	Cervical compression surgical site status	The status of compression at the surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22324	C22324	Chiari malformation bowel bladder onset important symptom scale	The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.