CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 676 - 700 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22473	C22473	Anemia condition indicator	The indicator related to the blood condition anemia	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C18035	C18035	Medication prior name	Name of the prior/concomitant agent or drug administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22728	C22728	Frequent nausea indicator	Indicator of whether the patient/participant has experienced frequent nausea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22270	C22270	Reflex deep tendon reflex adductor response score	The response score related to deep tendon reflex testing of adductor (obturator:l2-4)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55645	C55645	Neck Disability Index - recreation indicator	The recreation indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2157-C22222	C22222	Sensory pain temperature deficit indicator	The indicator related to a sensory deficit related to pain and/or temperature	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2153-C22027	C22027	Motor strength testing left deltoid scale	The amount of movement in the left deltoid muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56966	C56966	Jugular compression type	Type of jugular compression	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21704	C21704	Coordination finger to nose right upper extremity assessment scale	The scale related to assessment of the motion finger to nose right (upper extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2138-C21677	C21677	Allergy food type text	Free-text field to specify the type of food causing an allergic reaction	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2183-C22464	C22464	Surgical procedure dural technique type	The type of dural technique (surgical approach to the dura) used	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22035	C22035	Motor strength testing left wrist extension scale	The amount of movement in the extension of the left wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56974	C56974	Muscle spasm induration type	Type of muscle spasm induration	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22744	C22744	Recurrent urinary tract infection indicator	Indicator of whether the patient/participant has a history of recurring urinary tract infections	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22443	C22443	Medical history correction cleft palate abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's cleft palate	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2142-C21712	C21712	Coordination total assessment score	Total score of the Coordination assessment scale	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2150-C21966	C21966	Ataxia upper extremity indicator	The indicator related to upper extremities having ataxia	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2164-C22371	C22371	Chiari malformation tethered spinal cord urinary incontinence indicator	The indicator related to urinary incontinence	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C21873	C21873	Medical history hearing deficit indicator	The indicator related to personal medical history of hearing deficit or use of hearing aid	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2161-C22274	C22274	Surgical procedure type	The type of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22515	C22515	Syrinx anatomic change indicator	Indicator related to the anatomic change in the syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22221	C22221	Chiari malformation neurological examination secondary sensory modalities intact indicator	The indicator related to secondary sensory modalities being intact (e.g. limb localization, DSS, graphesthesia)	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21736	C21736	Imaging syrinx width measurement	Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22529	C22529	Shunt valve surgical implantation date	Date of surgical implantation	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.