CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 601 - 625 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2155-C22213	C22213	Reflex deep tendon reflex jaw response score	The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22532	C22532	Shunt valve removal date	Date shunt valve was removed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22044	C22044	Motor strength testing atrophy indicator	The indicator relating to atrophy in a muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22577	C22577	Parenchymal morphology post surgical procedure brainstem change measurement	Measurement of the change in the patient's brainstem shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22520	C22520	Parenchymal morphology post surgical procedure tonsil shape type	Type of the shape of the patient's cerebellar tonsils post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2163-C22295	C22295	Chiari malformation precipitate factor type	The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2155-C22272	C22272	Reflex deep tendon reflex achilles response score	The response score related to deep tendon reflex testing of achilles (tibial:s1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21746	C21746	Imaging posterior cranial fossa clivus length measurement	The measurement as related to distance from dorsum sella to basion on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2153-C22052	C22052	Motor strength testing left ehl scale	The amount of movement in the left EHL	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2193-C55653	C55653	Head shake thrust status	The status related to head shake/thrust	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C22320	C22320	Chiari malformation brain fog onset important symptom scale	The scale as related to brain fog at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2154-C22185	C22185	Chiari malformation neurological examination visual field full indicator	The indicator related to visual fields being full to confrontation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55661	C55661	Cervical compression surgical site tenderness anatomic site	The anatomic site related to cervical compression at surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22771	C22771	Snoring indicator	Indicator of whether the patient/participant snores during sleep	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22361	C22361	Assessment post surgical procedure type	Type of post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2272-C55643	C55643	Neck Disability Index - driving indicator	The driving pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21706	C21706	Coordination finger to nose left upper extremity assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2145-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22298	C22298	Reflex pyramidal frontal release sign glabellar status	The response status as related to pyramidal/frontal release sign glabellar reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2157-C22226	C22226	Sensory abnormal stabbing pain indicator	The indicator related to abnormal stabbing pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2153-C22030	C22030	Motor strength testing left iliopsoas scale	The amount of movement in the left iliopsoas	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2150-C21923	C21923	Balance unsteady stand walk indicator	The indicator related to feelings of unsteadiness when standing or walking	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2163-C22357	C22357	Chiari malformation identify speciality diagnosis type	The type of specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

Displaying 601 - 625 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.