CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 576 - 600 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22015 Ocular movement disorder type

The type as related to ocular movement disorder

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22375 Chiari malformation tethered spinal cord urinary drench incontinence indicator

The indicator related to urinary drenching (in context of urinary incontinence)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22490 Valsalva challenge perform indicator

The indicator related to whether a valsalva challenge was performed in order to assess the integrity of the closure

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56984 Range of motion at hip external side type

The hip that the participant/subject feels pain on during external range of motion

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22754 Attain orgasm difficulty indicator

Indicator of whether the patient/participant experiences difficulty attaining orgasm

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22453 Medical history dysautonomia indicator

The indicator related to any reported history of POTS (postural orthostatic tachycardia syndrome), NMH (Neurally mediated Hypotension) or fainting

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22102 Modified Ashworth Scale - Limb tone testing right wrist scale

The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22385 Chiari malformation tethered spinal cord leg pain indicator

The indicator related to leg pain

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22714 Vision doubled indicator

Indicator of whether the patient/participant has double vision

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C19761 Medical history glaucoma diagnosis indicator

Indicator of history of Glaucoma

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22498 Cranioplasty cerebelloplasty performed six month type

The type of cranioplasty/ cerebelloplasty performed post Chiari decompression at the 6 month point

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22762 Chronic fatigue indicator

Indicator of whether the patient/participant is experiencing or exhibits chronic fatigue

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C18495 Protocol ID number

The designated number used to identify the protocol or study to which participants/subjects will be enrolled

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21690 Chiari I malformation headache pressure daily occurrence indicator

Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21774 Chiari malformation screening bruise stretch mark skin hernia prolapse scar formation indicator

The indicator related to easy bruising, stretch marks, stretchy skin, hernias, prolapses, or unusual scar formation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22185 Chiari malformation neurological examination visual field full indicator

The indicator related to visual fields being full to confrontation

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21776 Chest clear text

The free text field related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22340 Chiari malformation auditory symptoms onset symptom severity scale

The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22364 Reflex autonomic reflex RR interval response variation status

The response status as related to autonomic reflexes RR interval response variation status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22230 Headache duration

The duration of the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22372 Imaging pre surgical procedure date

Date of pre-surgical imaging

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21786 Headache combination quality type

The quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22202 Chiari malformation neurological examination gag reflex bilateral present indicator

The indicator related to gag reflex being present bilaterally

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
Displaying 576 - 600 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.