CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 401 - 425 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2147-C21769	C21769	Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator	The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22181	C22181	Chiari malformation neurological examination speech fluent comprehension intact indicator	The indicator related to speech being fluent and comprehension intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21763	C21763	Temporal artery tenderness absent assessment text	The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22574	C22574	Surgical procedure complication mechanic displacement type	Type of mechanical displacement the subject has, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2142-C21705	C21705	Coordination finger to nose right upper extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (right upper extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2190-C22517	C22517	Syrinx length change measurement	Measurement of the change in the longitudinal length of the patient's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2163-C22333	C22333	Chiari malformation neck pain onset symptom severity scale	The scale as related to neck pain at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2138-C21678	C21678	Allergy food reaction type	Type of reaction caused by food allergy	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2154-C22189	C22189	Chiari malformation neurological examination facial sensation normal indicator	The indicator related to having normal facial sensation to touch and pin	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21784	C21784	Peripheral edema clubbing cyanosis absence text	The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2143-C21726	C21726	Karnofsky modified performance status score	Score identifying current level of functioning favoring the highest level estimate	Supplemental	Functional Status Karnofsky Score	False	Chiari I Malformation	Chiari I Malformation
F2190-C22528	C22528	Surgical procedure complication cerebrospinal fluid disorder indicator	Indicator related to the complication of a cerebrospinal fluid (CSF) disorder	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21746	C21746	Imaging posterior cranial fossa clivus length measurement	The measurement as related to distance from dorsum sella to basion on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2163-C22351	C22351	Chiari malformation bowel bladder onset symptom severity scale	The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2161-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21833	C21833	Headache symptom association type	The type as related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22207	C22207	Chiari malformation neurological examination tandem standing walking not difficult indicator	The indicator related to not having difficulty with tandem standing and walking	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2146-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2193-C55658	C55658	Strabismus indicator	The indicator related to strabismu (esotropia/exotropia/skew deviation)	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2140-C21717	C21717	Sleep disorder finding type	Type as related to sleep disorder	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2161-C22253	C22253	Surgical procedure muscle spasm status	The status related to muscle spasms in surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F0016-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2154-C22218	C22218	Chiari malformation neurological examination Romberg negative indicator	The indicator related to Romberg (Std) negative	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C22526	C22526	Shunt valve type	Type of Shunt Valve	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22040	C22040	Motor strength testing intrinsic right hand scale	The amount of movement in the intrinsic muscles of the right hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation

Displaying 401 - 425 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.