CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 326 - 350 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19761 Medical history glaucoma diagnosis indicator

Indicator of history of Glaucoma

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C56970 Muscle spasm type

Type of muscle spasm

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22740 Urination urge control difficulty indicator

Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22358 Chiari malformation identify specialty diagnosis type text

The free text field related to identifying the specialty of the individual responsible for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22052 Motor strength testing left ehl scale

The amount of movement in the left EHL

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22243 Surgical procedure hardware anatomic site

The anatomic site related to hardware of surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22397 Cerebrospinal fluid ventral space measurement

Measurement related to the minimal cerebrospinal fluid (CSF) space ventral to the spinal canal (SC) at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22512 Shunt function valve anatomic site type

Site/location

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21761 Chiari malformation screening hypermobility family indicator

The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22576 Parenchymal morphology post surgical procedure tonsil change measurement

Measurement related to the change in the patient's tonsil shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22185 Chiari malformation neurological examination visual field full indicator

The indicator related to visual fields being full to confrontation

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01541 Weight measurement

Measurement of participant's weight

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22519 Syrinx width change measurement

Measurement of the change in the maximum width of the patient's spinal syrinx after the operation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22536 Shunt valve set type

setting type (confirmation, mechanical, electronic)

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22364 Reflex autonomic reflex RR interval response variation status

The response status as related to autonomic reflexes RR interval response variation status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21773 Chiari malformation screening chronic edema varicose vein fatty skin tumor diagnosis indicator

The indicator related to fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling) in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C55652 Eye visual fixation vertical upgaze type

The type as related to vertical upgaze in visual fixation

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22202 Chiari malformation neurological examination gag reflex bilateral present indicator

The indicator related to gag reflex being present bilaterally

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21775 Chest clear indicator

The indicator related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22307 Chiari malformation Neck pain onset important symptom scale

The scale as related to neck pain at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22533 Surgical procedure complication fluid collection indicator

Indicator related to the complication of a fluid collection within the brain

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21748 Imaging posterior cranial fossa foramen magnum diameter measurement

The measurement as related to distance from basion to opisthion

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22544 Shunt valve scan type

Shunt valve scan type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
Displaying 326 - 350 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.