CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22431	C22431	Neck injury unspecified indicator	The indicator relating to any unspecified neck injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22480	C22480	Spinal cord tethered myelomeningocele indicator	The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22399	C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22407	C22407	Cutaneous stigmata occult thread spinal cord appendage indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22415	C22415	Chiari malformation family history indicator	The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22451	C22451	Hydrocephalus family history ventricle variant indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22481	C22481	Spinal cord tethered thick filum indicator	The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22408	C22408	Cutaneous stigmata occult tethered spinal cord meningocele manque indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22452	C22452	Klippel Feil Anomaly diagnosis indicator	The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22474	C22474	Medical history cerebrospinal fluid leak intracranial hypotension indicator	The indicator relating to any medical history of leak of cerebrospinal fluid (CSF) and/or intracranial hypotension	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22409	C22409	Skin abnormality stretch mark indicator	The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22466	C22466	Medical history infectious disease central nervous system implication indicator	The indicator related to the history of an infectious disease with central nervous system (CNS) implications	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2172-C21728	C21728	Imaging cerebellar tonsil lowest position measurement	The measurement related to lowest tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22402	C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22410	C22410	Skin abnormality hyperextensiblilty indicator	The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22195	C22195	Base head pressure indicator	The indicator related to pressure at the base of head	Core	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22419	C22419	Birth delivery Caesarian section indicator	The indicator related to birth presentation at delivery being a Caesarian section	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2172-C21753	C21753	Imaging spine anomaly other craniocervical present indicator	The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22427	C22427	Fetal alcohol syndrome condition indicator	The indicator related to the condition of fetal alcohol syndrome, which the group of signs and symptoms of birth defects caused by a woman drinking alcohol during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22467	C22467	Medical history sarcoidosis condition indicator	The indicator related to medical history of the condition sarcoidosis, the growth of many tiny inflammatory cells throughout the body	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.