CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22523 Shunt valve manufacturer other text

The free-text related to shunt valve manufacturer; specifying other text

Exploratory Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22750 Celiac disease gluten sensitivity diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with celiac disease or gluten sensitivity

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22449 Hydrocephalus family history slit ventricle indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically slit ventricle syndrome

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22071 Modified Ashworth Scale - Limb tone testing right elbow scale

The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22381 Chiari malformation tethered spinal cord occasional fecal incontinence indicator

The indicator related to the occasional incontinence (in context of stool)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22665 Medical history chronic constipation indicator

Indicator of whether the participant/subject has/had chronic constipation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21714 Gag reflect status

Status as related to gag reflex

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C17460 Cancer history indicator

Indicator as to whether the participant/subject has or had cancer

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22494 Ventral decompression type

The type of ventral decompression utilitized (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22758 Long-term memory loss indicator

Indicator of whether the patient/participant is experiencing a decline in long-term memory

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22457 Labor duration

The duration of the mother's labor, in hours

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22106 Modified Ashworth Scale - Limb tone testing right ankle scale

The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22389 Chiari malformation tethered spinal cord low back leg pain urinary symptom stair walk indicator

The indicator related to low back pain, leg pain, or urinary symptoms while walking up stairs

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22718 Walk unsteady indicator

Indicator of whether the patient/participant feels unsteady when walking

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21723 Coordination truncal instability assessment indicator

Indicator related to truncal instability or with a wide-based "drunken sailor" gait

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21870 Medical history Lyme disease indicator

The indicator related to personal medical history of Lyme disease

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22502 Spinal deformity indicator

The indicator related to a new spinal deformity or progression of an existing deformity

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22766 Pituitary problem diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with a pituitary gland problem

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22471 Methylenetetrahydrofolate reductase genetic defect indicator

The indicator related to the absence of the methylenetetrahydrofolate reductase (MTHFR) gene, a gene essential in converting vitamin B9 into a usable form and the body's growth and metabolism

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C21714 Gag reflect status

Status as related to gag reflex

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22726 Palpitations indicator

Indicator of whether the patient/participant has experienced palpitations

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21879 Surgical history prosthetic implantation indicator

The indicator related to surgical history of prosthetic implantation

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22361 Assessment post surgical procedure type

Type of post operative evaluation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22262 Reflex deep tendon reflex finger flexor response score

The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
Displaying 226 - 250 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.