CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21756 Imaging other incidental finding text

The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke)

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22560 Symptom cranial nerve surgical procedure change score

Score related to the change in the subject's cranial nerves scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21790 Headache frequency type

The rate at which a headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22568 Surgical procedure complication transdermal cerebrospinal fluid leak etiology type

Type related to the etiology of the trans-dermal cerebrospinal fluid (CSF) leak, if present

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21740 Imaging posterior cranial fossa basion axial interval measurement

The measurement as related to distance from tip of basion to posterior axial line

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22414 Osteoporosis osteopenia diagnosis indicator

The indicator relating to the diagnosis of osteoporosis and/or osteopenia based on DEXA measurement

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22283 Reflex superficial reflex cremasteri response status

The response status of superficial reflex testing of cremasteric (ilioinguinal/genitofemoral: L1-L2)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C22422 Gestation breech indicator

The indicator related to a breech gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22552 Symptom sensory deficit pre surgical procedure score

Score related to the symptom scale of the subject's sensory deficit pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22027 Motor strength testing left deltoid scale

The amount of movement in the left deltoid muscle

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22035 Motor strength testing left wrist extension scale

The amount of movement in the extension of the left wrist muscles

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22440 Head shape trigonocephaly indicator

The indicator related to head shape trigonocephaly, in which the subject has a triangular shaped forehead

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21682 Allergy reaction other source text

Free-text field to specify other source of allergy

Exploratory Allergy Chiari I Malformation Chiari I Malformation
C22043 Motor strength testing right hamstring scale

The amount of movement in the right hamstring

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22058 Modified Ashworth Scale - Limb tone testing right shoulder scale

The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22104 Modified Ashworth Scale - Limb tone testing right knee scale

The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56995 Sacroiliac joint dysfunction palpitation pain type

Type of palpitation in sacroiliac joint dysfunction pain

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22553 Symptom sensory deficit post surgical procedure score

Score related to the symptom scale of the subject's sensory deficit post-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22321 Reflex pyramidal frontal release sign palmomental status

The response status as related to pyramidal/frontal release sign palmomental reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21757 Imaging hydrocephalus ventriculomegaly finding indicator

The indicator related to presence of hydrocephalus/ventriculomegaly

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21778 Headache primary anatomic site

The location related to the anatomic site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22561 Symptom activity daily life pre surgical procedure score

Score related to the symptom scale of the subject's activities of daily life (ADLs) pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22368 Reflex superficial reflex abdominal response status

The response status of superficial reflex testing of abdominal (intercostal: T7-T12)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21791 Headache frequency score

The score relating to the rate at which the patient's headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22523 Shunt valve manufacturer other text

The free-text related to shunt valve manufacturer; specifying other text

Exploratory Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
Displaying 151 - 175 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.