CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21764 Chiari malformation screening ocular lens problem indicator

The indicator related to optic or ocular lens problems

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21765 Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator

The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21766 Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator

The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21767 Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator

The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21769 Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator

The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21770 Chiari malformation screening gastrointestinal gastric reflux irritable bowel syndrome malabsorption diagnosis indicator

The indicator related to diagnosis of gastric reflux, irritable bowel syndrome, or malabsorption in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21771 Chiari malformation screening wound prolong heal separation indicator

The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21773 Chiari malformation screening chronic edema varicose vein fatty skin tumor diagnosis indicator

The indicator related to fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling) in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21774 Chiari malformation screening bruise stretch mark skin hernia prolapse scar formation indicator

The indicator related to easy bruising, stretch marks, stretchy skin, hernias, prolapses, or unusual scar formation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21778 Headache primary anatomic site

The location related to the anatomic site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21780 Headache primary laterality anatomic site

The location related to the lateral site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21782 Headache primary laterality anatomic site score

The score relating to the anatomic site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21783 Headache focal point extension radiation type

The type of extension from the focal point of the headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21785 Headache focal point extension radiation score

The score relating to the extension from the focal point of a headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21786 Headache combination quality type

The quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21788 Headache quality score

The score related to the quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21790 Headache frequency type

The rate at which a headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21791 Headache frequency score

The score relating to the rate at which the patient's headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21833 Headache symptom association type

The type as related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21834 Headache symptom association score

The score related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21835 Headache temporal association type

The type as related to time of occurrence of consistent headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21836 Headache temporal association score

The score related to time of occurrence of consistent headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21837 Headache duration type

The type as related to duration of headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
Displaying 126 - 150 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.