CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 751 - 775 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2163-C22317	C22317	Chiari malformation fatigue onset important symptom scale	The scale as related to fatigue at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2159-C22259	C22259	Spine range of motion flexion degree value	The value in degrees related to range in motion of neck flexion (60) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22771	C22771	Snoring indicator	Indicator of whether the patient/participant snores during sleep	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56960	C56960	Truncal extension type	The participant/subject's truncal extension capability	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22337	C22337	Chiari malformation visual symptoms onset symptom severity scale	The scale as related to visual symptoms at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2160-C22229	C22229	Headache pain anatomic site	The anatomic site relating to the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2157-C22226	C22226	Sensory abnormal stabbing pain indicator	The indicator related to abnormal stabbing pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C19831	C19831	Psychiatric anxiety indicator	Indicator of anxiety	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22237	C22237	Surgical procedure anatomic site other text	The free text field related to other anatomic site of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22394	C22394	Tonsil position change measurement	Measurement related to the change in the position of the patient's lowest tonsil between pre surgical and post surgical images	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2158-C22509	C22509	Shunt type	Shunt type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2152-C18035	C18035	Medication prior name	Name of the prior/concomitant agent or drug administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22482	C22482	Surgical procedure tonsillar reduction type	The type of tonsillar reduction utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22037	C22037	Motor strength testing gluteus left scale	The amount of movement in the left gluteus	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2146-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2138-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2164-C22375	C22375	Chiari malformation tethered spinal cord urinary drench incontinence indicator	The indicator related to urinary drenching (in context of urinary incontinence)	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2145-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2153-C22027	C22027	Motor strength testing left deltoid scale	The amount of movement in the left deltoid muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22490	C22490	Valsalva challenge perform indicator	The indicator related to whether a valsalva challenge was performed in order to assess the integrity of the closure	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22045	C22045	Motor strength testing fasciculation indicator	The indicator relating to fasciculations in a muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21707	C21707	Coordination finger to nose left upper extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2194-C56984	C56984	Range of motion at hip external side type	The hip that the participant/subject feels pain on during external range of motion	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22453	C22453	Medical history dysautonomia indicator	The indicator related to any reported history of POTS (postural orthostatic tachycardia syndrome), NMH (Neurally mediated Hypotension) or fainting	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

Displaying 751 - 775 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.