CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22430 Brain injury unspecified indicator

The indicator relating to any unspecified brain injuries the subject has had

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22727 Breath shortness indicator

Indicator of whether the patient/participant has experienced shortness of breath

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22732 Burning pain abnormal extremity indicator

Indicator of whether the patient/participant has experienced an abnormal burning pain in his or her extremeties

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C17460 Cancer history indicator

Indicator as to whether the participant/subject has or had cancer

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C21718 Cardiac arrhythmia finding text

The free-text field to explain the findings of the cardiac arrhythmia

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21768 Carotid radial pulse intact indicator

The indicator related to an intact carotid and radial pulse

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21772 Carotid radial pulse intact text

The free text field related to an intact carotid and radial pulse

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22750 Celiac disease gluten sensitivity diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with celiac disease or gluten sensitivity

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22396 Cerebrospinal fluid dorsal space change measurement

Measurement related to the change in the width of the dorsal cerebrospinal fluid (CSF) spaces

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22395 Cerebrospinal fluid dorsal space measurement

Measurement related to the minimal cerebrospinal fluid (CSF) space dorsal to the tonsils at the craniomandibular joint (CMJ)

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22514 Cerebrospinal fluid Magendie patency change measurement

Measurement related to the change in the patency of the foramen on Magendie

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22513 Cerebrospinal fluid Magendie patency measurement

Measurement of the foramen of Magendie, which drains cerebrospinal fluid (CSF) from the fourth ventrical to the cistema magna

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22398 Cerebrospinal fluid ventral space change measurement

Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22397 Cerebrospinal fluid ventral space measurement

Measurement related to the minimal cerebrospinal fluid (CSF) space ventral to the spinal canal (SC) at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C55660 Cervical compression surgical site status

The status of compression at the surgical site

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C55661 Cervical compression surgical site tenderness anatomic site

The anatomic site related to cervical compression at surgical site

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56962 Cervical extraction type

Type of cervical extraction (sitting)

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22504 Cervical fusion indicator

The indicator related to cervical fusion

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22461 Cervical laminectomy anatomic site

The anatomic site or location related to the cervical laminectomy

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22462 Cervical laminotomy indicator

The indicator related to cervical laminotomy performed

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C55659 Cervical posture type

The type as related to cervical posture

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21775 Chest clear indicator

The indicator related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
Displaying 76 - 100 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.