CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21694 Chiari I malformation unsteady stand walk symptom indicator

The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21695 Chiari I malformation headache pressure eye ear light sensitive symptom indicator

The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21696 Chiari I malformation headache strain activity worsen symptom indicator

The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation

Supplemental-Highly Recommended Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21697 Chiari I malformation chronic fatigue short-term memory loss irritable symptom indicator

The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21698 Chiari I malformation generalize weakness stiff arm leg symptom indicator

The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21699 Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator

The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21700 Coordination gait assessment scale

The scale related to assessment of manner of person's walking

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21701 Coordination gait tandem assessment scale

The scale related to assessment of manner of person's walking where toes of the back foot touch the heel of the front foot at each step

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21702 Coordination stance assessment scale

The scale related to assessment of way someone stands

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21703 Coordination Romberg maintain stance eye close assessment scale

The scale related to assessment of Romberg's test of neurological function of maintaining way of standing with eyes closed

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21704 Coordination finger to nose right upper extremity assessment scale

The scale related to assessment of the motion finger to nose right (upper extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21705 Coordination finger to nose right upper extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (right upper extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21706 Coordination finger to nose left upper extremity assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21707 Coordination finger to nose left upper extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21708 Coordination heel to shin right lower extremity assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (right lower extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21709 Coordination heel to shin right lower extremity tap assessment scale

The scale related to assessment of completing the motion of heel to shin (right lower extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21710 Coordination heel to shin left lower extremity assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21711 Coordination heel to shin left lower extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (lower level extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21712 Coordination total assessment score

Total score of the Coordination assessment scale

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21726 Karnofsky modified performance status score

Score identifying current level of functioning favoring the highest level estimate

Supplemental Functional Status Karnofsky Score Chiari I Malformation Chiari I Malformation
C21727 Lansky modified performance status score

Score that best identifies your child's current level of functioning favoring the highest level estimate

Supplemental Functional Status Lansky Score Chiari I Malformation Chiari I Malformation
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental General Exam Chiari I Malformation Chiari I Malformation
Displaying 51 - 75 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.