CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56974 Muscle spasm induration type

Type of muscle spasm induration

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22744 Recurrent urinary tract infection indicator

Indicator of whether the patient/participant has a history of recurring urinary tract infections

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22443 Medical history correction cleft palate abnormality indicator

The indicator related to medical history of or correction of an abnormality in the subject's cleft palate

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C21966 Ataxia upper extremity indicator

The indicator related to upper extremities having ataxia

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22371 Chiari malformation tethered spinal cord urinary incontinence indicator

The indicator related to urinary incontinence

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21833 Headache symptom association type

The type as related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21873 Medical history hearing deficit indicator

The indicator related to personal medical history of hearing deficit or use of hearing aid

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22488 Dural closure technique type

The type of dural closure technique utilized (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56982 Trigger point paracervical type

Type of paracervical trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22752 Sex decreased interest indicator

Indicator of whether the patient/participant has experienced decreased interest in sex

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22100 Modified Ashworth Scale - Limb tone testing right hip scale

The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22383 Chiari malformation tethered spinal cord loss sexual intercourse ability indicator

The indicator related to the loss of ability to perform physiological sexual functions

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22712 Light sensitivity indicator

Indicator of whether the patient/participant is sensitive to light

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C18793 Medical history condition other text

The free-text field related to 'Medical history condition type', specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22496 Surgical procedure wound revision requirement indicator

The indicator related to whether surgical wound revision was required

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56990 Heel walking weakness type

Type of heel walking weakness

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22760 Word selection anomia indicator

Indicator of whether the patient/participant is experiencing or exhibits problems with recalling words

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22459 Medical history Menieres disease indicator

The indicator related to medical history of Meniere's disease, an inner ear disease that causes vertigo, hearing problems, and a ringing sound in the ear

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22720 Tremor indicator

Indicator of whether the patient/participant has tremors

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C55656 Nystagmus valsalva emergence indicator

The indicator related to emergence or worsening of nystagmus with valsalva maneuver

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C21727 Lansky modified performance status score

Score that best identifies your child's current level of functioning favoring the highest level estimate

Supplemental Functional Status Lansky Score Chiari I Malformation Chiari I Malformation
Displaying 276 - 300 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.