CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C00035 Gender type

Self-reported gender of the participant/subject

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22756 Genital pelvic sensation loss indicator

Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22422 Gestation breech indicator

The indicator related to a breech gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22424 Gestation other indicator

The indicator related to another form of gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22425 Gestation other text

Text describing the other form of gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22420 Gestation singleton indicator

The indicator related to a single gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22423 Gestation triplet indicator

The indicator related to a triplet gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22421 Gestation twin indicator

The indicator related to a twin gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22426 Gestational diabetes condition indicator

The indicator related to the condition of gestational diabetes, which develops when women are not able to make enough insulin during pregnancy

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C58515 Greatest transverse spinal cord diameter measurement

Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C58516 Greatest transverse thecal sac diameter measurement

Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55653 Head shake thrust status

The status related to head shake/thrust

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22439 Head shape dolichocephaly indicator

The indicator related to head shape dolicocephaly, in which the subject's head is longer that would be expected, relative to its width

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22438 Head shape plagiocephaly indicator

The indicator related to head shape plagiocephaly, in which one side of the subject's head is flat

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22440 Head shape trigonocephaly indicator

The indicator related to head shape trigonocephaly, in which the subject has a triangular shaped forehead

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21843 Headache aggravating pain factor score

The score related to factor aggravating headache pain

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21842 Headache aggravating pain factor type

The type as related to factor aggravating headache pain

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21844 Headache assessment total score

The total score of headache assessment

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22238 Headache associate symptom type

The type related to the associated symptoms that the subject is experiencing during his/her headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
Displaying 276 - 300 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.