CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22408	C22408	Cutaneous stigmata occult tethered spinal cord meningocele manque indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22480	C22480	Spinal cord tethered myelomeningocele indicator	The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22450	C22450	Hydrocephalus family history aqueductal stenosis indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2182-C22409	C22409	Skin abnormality stretch mark indicator	The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22481	C22481	Spinal cord tethered thick filum indicator	The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22451	C22451	Hydrocephalus family history ventricle variant indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2172-C21728	C21728	Imaging cerebellar tonsil lowest position measurement	The measurement related to lowest tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22402	C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22410	C22410	Skin abnormality hyperextensiblilty indicator	The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22474	C22474	Medical history cerebrospinal fluid leak intracranial hypotension indicator	The indicator relating to any medical history of leak of cerebrospinal fluid (CSF) and/or intracranial hypotension	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22195	C22195	Base head pressure indicator	The indicator related to pressure at the base of head	Core	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22452	C22452	Klippel Feil Anomaly diagnosis indicator	The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2172-C21729	C21729	Imaging cerebellar tonsil right position measurement	The measurement related to right tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22403	C22403	Cutaneous stigmata occult tethered spinal cord hair tuft indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for hair tuft	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F0016-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2182-C22466	C22466	Medical history infectious disease central nervous system implication indicator	The indicator related to the history of an infectious disease with central nervous system (CNS) implications	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56961	C56961	Straight leg raising pain type	The participant/subject's capability of straight leg raising	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22428	C22428	Material infection condition indicator	The indicator related to the condition of a maternal infection developing during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22558	C22558	Symptom cranial nerve pre surgical procedure score	Score related to the symptom scale of the subject's cranial nerves pre surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22566	C22566	Symptom depression surgical procedure change score	Score related to the change in the subject's depression scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21837	C21837	Headache duration type	The type as related to duration of headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.