CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21682 Allergy reaction other source text

Free-text field to specify other source of allergy

Exploratory Allergy Chiari I Malformation Chiari I Malformation
C21683 Allergy reaction other source indicator

Indicator related to other source of allergic reaction

Exploratory Allergy Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21685 Beighton Score - Motion finger bend back score

Score/Assessment of Motion to bend finger back as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21713 Swallow function problem type

Type as related to problem with function of swallowing

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21714 Gag reflect status

Status as related to gag reflex

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21716 Tongue function atrophy assessment status

Status as related to tongue function atrophy

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21717 Sleep disorder finding type

Type as related to sleep disorder

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21718 Cardiac arrhythmia finding text

The free-text field to explain the findings of the cardiac arrhythmia

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21723 Coordination truncal instability assessment indicator

Indicator related to truncal instability or with a wide-based "drunken sailor" gait

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21724 Nausea vomit assessment status

The status as related to nausea and vomiting

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21725 Strabismus assessment indicator

The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21690 Chiari I malformation headache pressure daily occurrence indicator

Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21691 Chiari I malformation neck pain stiff radiate shoulder symptom indicator

The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
Displaying 26 - 50 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.