CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2165-C22033	C22033	Motor strength testing right gluteus scale	The amount of movement in the right gluteus	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56969	C56969	Phalens sign type	The reading of the participant/subject's Phalen's signs	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22438	C22438	Head shape plagiocephaly indicator	The indicator related to head shape plagiocephaly, in which one side of the subject's head is flat	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22041	C22041	Motor strength testing left quadricep scale	The amount of movement in the left quadricep	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22446	C22446	Malar hypoplasia condition indicator	The indicator related to the condition of malar hypoplasia, in which the subject has an underdeveloped maxilla	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2140-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2165-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22763	C22763	Nipple discharge indicator	Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples	Exploratory	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22467	C22467	Medical history sarcoidosis condition indicator	The indicator related to medical history of the condition sarcoidosis, the growth of many tiny inflammatory cells throughout the body	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2165-C22025	C22025	Motor strength testing iliopsoas right scale	The amount of movement in the right iliopsoas	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22559	C22559	Symptom cranial nerve post surgical procedure score	Score related to the symptom scale of the subject's cranial nerves post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21838	C21838	Headache duration score	The score related to type of duration of headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2172-C21731	C21731	Imaging cerebellar tonsil shape type	The type as related to the relative tonsil shape reported	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22511	C22511	Shunt valve manufacturer type	Manufacturer of valve	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2155-C22248	C22248	Reflex deep tendon reflex pectoralis response score	The response score related to deep tendon reflex testing of pectoralis (ant. thoracic: c5-t1)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22413	C22413	Pneumothorax hernia organ prolapse indicator	The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22530	C22530	Surgical procedure complication cerebrospinal fluid disorder type	Type of cerebrospinal fluid (CSF) disorder the patient has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22276	C22276	Reflex deep tendon reflex hamstring response score	The response score related to deep tendon reflex testing of hamstring (sciatic/tibial:l4-s2)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22421	C22421	Gestation twin indicator	The indicator related to a twin gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22551	C22551	Symptom general pain surgical procedure change score	Score related to the change in the subject's general pain scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.