CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21749 Imaging posterior cranial fossa superior posterior fossa length measurement

The measurement as related to distance from dorsum sella to internal occipital protuberance

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22545 Shunt valve scan date

Date of shunt valve scan

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22180 Chiari malformation neurological examination normal mood indicator

The indicator related to mood and affect being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C55661 Cervical compression surgical site tenderness anatomic site

The anatomic site related to cervical compression at surgical site

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22328 Chiari malformation headache onset symptom severity scale

The scale as related to headache at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22266 Spine range of motion trunk forward flexion estimate degree value

The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22188 Chiari malformation neurological examination facial asymmetry weakness absent indicator

The indicator related to not having facial asymmetry or weakness

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C21883 Surgical history other text

The free-text field related to other past surgery

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22734 Skin change indicator

Indicator of whether the patient/participant has experienced a skin change

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21785 Headache focal point extension radiation score

The score relating to the extension from the focal point of a headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21792 Cutaneous stigma absent text

The free text field related to an absence of cutaneous stigma

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21716 Tongue function atrophy assessment status

Status as related to tongue function atrophy

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22462 Cervical laminotomy indicator

The indicator related to cervical laminotomy performed

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22742 Excessive urination frequency indicator

Indicator of whether the patient/participant's urination frequency has been excessive

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22366 Chiari malformation tethered spinal cord urine hold trouble indicator

The indicator related to trouble holding your urine

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21836 Headache temporal association score

The score related to time of occurrence of consistent headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22486 Surgical procedure arachnoid veil finding type

The type of finding in context of the arachnoid veil

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56980 Trigger point suboccipital type

Type of suboccipital trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
Displaying 151 - 175 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.