CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 861
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21727 Lansky modified performance status score

Score that best identifies your child's current level of functioning favoring the highest level estimate

Supplemental Functional Status Lansky Score Chiari I Malformation Chiari I Malformation
C22575 Surgical procedure performed date

Date the surgical procedure was performed on the subject

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21739 Imaging posterior cranial fossa pB-C2 measurement

The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22535 Shunt valve in place indicator

Shunt valve currenting in place

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22045 Motor strength testing fasciculation indicator

The indicator relating to fasciculations in a muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22716 Ear pressure indicator

Indicator of whether the patient/participant has pressure in his or her ears

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C19806 Medical history endocrine diabetes indicator

Indicator of diabetes

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C00005 Birth country name

Name for country where the participant was born

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22500 Surgical procedure wound revision requirement six month indicator

The indicator related to a surgical wound revision required at 6 months post Chiari decompression

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C19256 Study protocol name

Name of study protocol

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22724 Speech difficulty indicator

Indicator of whether the patient/participant has difficulty with speech

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21876 Surgical history pacemaker indicator

The indicator related to surgical history of a pacemaker

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22258 Reflex deep tendon reflex triceps response score

The response score related to deep tendon reflex testing of triceps (radial:c7-8)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55641 Neck Disability Index - Concentration

The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22772 Precipitating cause test type

Type of test(s) performed to identify the precipitating cause of the neurological disorder

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22710 Medication prior or concomitant dose frequency other text

The free-text field related to 'Medication prior or concomitant dose frequency' specifying other text. Dosing frequency for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C21700 Coordination gait assessment scale

The scale related to assessment of manner of person's walking

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21673 Allergy medication antibiotic reaction type

Type related to allergic reaction to antibiotic medication

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22460 Suboccipital craniectomy size left right measurement range

The range of measurement related to the size of the suboccipital craniectomy left or right

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
Displaying 151 - 175 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.