CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2141-C21697	C21697	Chiari I malformation chronic fatigue short-term memory loss irritable symptom indicator	The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21698	C21698	Chiari I malformation generalize weakness stiff arm leg symptom indicator	The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21690	C21690	Chiari I malformation headache pressure daily occurrence indicator	Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21695	C21695	Chiari I malformation headache pressure eye ear light sensitive symptom indicator	The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21696	C21696	Chiari I malformation headache strain activity worsen symptom indicator	The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation	Supplemental-Highly Recommended	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2156-C21693	C21693	Chiari I malformation position change dizzy symptom indicator	The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21693	C21693	Chiari I malformation position change dizzy symptom indicator	The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2156-C21692	C21692	Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator	The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21692	C21692	Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator	The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21694	C21694	Chiari I malformation unsteady stand walk symptom indicator	The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2163-C22292	C22292	Chiari malformation associate problem diagnosis type	The type related to any associated problems found at the patient's diagnosis of Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22315	C22315	Chiari malformation auditory symptoms onset important symptom scale	The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22340	C22340	Chiari malformation auditory symptoms onset symptom severity scale	The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22324	C22324	Chiari malformation bowel bladder onset important symptom scale	The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22351	C22351	Chiari malformation bowel bladder onset symptom severity scale	The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22320	C22320	Chiari malformation brain fog onset important symptom scale	The scale as related to brain fog at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22345	C22345	Chiari malformation brain fog onset symptom severity scale	The scale as related to brain fog at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22323	C22323	Chiari malformation cardiac onset important symptom scale	The scale as related to cardiac at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22347	C22347	Chiari malformation cardiac onset symptom severity scale	The scale as related to cardiac at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2183-C22434	C22434	Chiari malformation conservative management duration	Duration of conservative management from time of initial imaging diagnosis	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22432	C22432	Chiari malformation conservative management indicator	The indicator related to conservative management with no surgical treatment offered	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C22415	C22415	Chiari malformation family history indicator	The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22317	C22317	Chiari malformation fatigue onset important symptom scale	The scale as related to fatigue at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.