CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

855 results.
Operations
Selected 5 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22732 Burning pain abnormal extremity indicator

Indicator of whether the patient/participant has experienced an abnormal burning pain in his or her extremeties

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22376 Tonsil lowest position measurement

Measurement of the lowest position of the patient's tonsils

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21732 Imaging syrinx present indicator

The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging

Supplemental-Highly Recommended Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21874 Medical history paraplegia quadriplegia indicator

The indicator related to personal medical history of paraplegia/quadriplegia

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C21884 Pain lower back indicator

The indicator relating to lower back pain

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
855 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.