CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 801 - 825 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22565	C22565	Symptom depression post surgical procedure score	Score related to the symptom scale of the subject's depression post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21737	C21737	Imaging posterior cranial fossa soft tissue clivo-axial angle (CXA) measurement	The measurement as related to soft tissue clivo-axial angle (CXA)	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22411	C22411	Skin abnormality peizogenic papule indicator	The indicator related to evaluation of the presence of skin abnormality of peizogenic papule consistent with connective tissue disorders	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2172-C21745	C21745	Imaging posterior cranial basion dens axial interval flexion measurement	The measurement as related to distance from basion to tip of odontoid in flexion	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2193-C55657	C55657	Nystagmus neck flexion emergence indicator	The indicator related to emergence or worsening of nystagmus with neck flexion	Exploratory	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22419	C22419	Birth delivery Caesarian section indicator	The indicator related to birth presentation at delivery being a Caesarian section	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22549	C22549	Symptom general pain pre surgical procedure score	Score related to the symptom scale of the subject's general pain pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22301	C22301	Reflex pyramidal frontal release sign snout status	The response status as related to pyramidal/frontal release sign snout reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21753	C21753	Imaging spine anomaly other craniocervical present indicator	The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F0016-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2182-C22466	C22466	Medical history infectious disease central nervous system implication indicator	The indicator related to the history of an infectious disease with central nervous system (CNS) implications	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C19877	C19877	Medical history depression since last visit indicator	Indicator of depression since last study visit	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2172-C21730	C21730	Imaging cerebellar tonsil left position measurement	The measurement related to left tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22404	C22404	Cutaneous stigmata occult tethered spinal cord dimple indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22476	C22476	Spinal cord tethered none indicator	The indicator related to not having the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22429	C22429	Motor vehicle accident injury indicator	The indicator relating to any previous or current injuries due to a motor vehicle accident (MVA)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22405	C22405	Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22447	C22447	Hydrocephalus family history untreated indicator	The indicator related to any personal or immediate family history of untreated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22205	C22205	Cough cry laugh sneeze pain worse indicator	The indicator related to pain worsened by coughing, crying, laughing, sneezing, orgasms, bowel movements	Core	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22430	C22430	Brain injury unspecified indicator	The indicator relating to any unspecified brain injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C01058	C01058	Traumatic Brain Injury symptom indicator	Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

Displaying 801 - 825 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.