CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 776 - 800 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22412	C22412	Arachnodactyly presence indicator	The indicator for arachnodactyly ("spider fingers") or achromachia is a condition in which the fingers and toes are abnormally long and slender, in comparison to the palm of the hand and arch of the foot	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C22542	C22542	Shunt valve manometric pressure type	Provide the shunt value for the manometric pressure	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2182-C22420	C22420	Gestation singleton indicator	The indicator related to a single gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22550	C22550	Symptom general pain post surgical procedure score	Score related to the symptom scale of the subject's general pain post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22303	C22303	Reflex pyramidal frontal release sign hand grasp status	The response status as related to pyramidal/frontal release sign hand grasp reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21754	C21754	Imaging spine anomaly tethered cord present indicator	The indicator related to presence of tethered cord on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22261	C22261	Spine range of motion Lhermitte's sign evoke type	The type of range of motion in which Lhermitte's sign was evoked in the patient's spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2141-C21695	C21695	Chiari I malformation headache pressure eye ear light sensitive symptom indicator	The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2194-C56961	C56961	Straight leg raising pain type	The participant/subject's capability of straight leg raising	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22428	C22428	Material infection condition indicator	The indicator related to the condition of a maternal infection developing during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22558	C22558	Symptom cranial nerve pre surgical procedure score	Score related to the symptom scale of the subject's cranial nerves pre surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22033	C22033	Motor strength testing right gluteus scale	The amount of movement in the right gluteus	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56969	C56969	Phalens sign type	The reading of the participant/subject's Phalen's signs	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22438	C22438	Head shape plagiocephaly indicator	The indicator related to head shape plagiocephaly, in which one side of the subject's head is flat	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22041	C22041	Motor strength testing left quadricep scale	The amount of movement in the left quadricep	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22446	C22446	Malar hypoplasia condition indicator	The indicator related to the condition of malar hypoplasia, in which the subject has an underdeveloped maxilla	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22763	C22763	Nipple discharge indicator	Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples	Exploratory	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22467	C22467	Medical history sarcoidosis condition indicator	The indicator related to medical history of the condition sarcoidosis, the growth of many tiny inflammatory cells throughout the body	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22025	C22025	Motor strength testing iliopsoas right scale	The amount of movement in the right iliopsoas	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2148-C21838	C21838	Headache duration score	The score related to type of duration of headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2172-C21731	C21731	Imaging cerebellar tonsil shape type	The type as related to the relative tonsil shape reported	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22511	C22511	Shunt valve manufacturer type	Manufacturer of valve	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation

Displaying 776 - 800 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.