CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 701 - 725 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2165-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22410	C22410	Skin abnormality hyperextensiblilty indicator	The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22411	C22411	Skin abnormality peizogenic papule indicator	The indicator related to evaluation of the presence of skin abnormality of peizogenic papule consistent with connective tissue disorders	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22409	C22409	Skin abnormality stretch mark indicator	The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22734	C22734	Skin change indicator	Indicator of whether the patient/participant has experienced a skin change	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21717	C21717	Sleep disorder finding type	Type as related to sleep disorder	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2156-C22771	C22771	Snoring indicator	Indicator of whether the patient/participant snores during sleep	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22724	C22724	Speech difficulty indicator	Indicator of whether the patient/participant has difficulty with speech	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22399	C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22401	C22401	Spina bifida myelomeningocele diagnosis indicator	The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22400	C22400	Spina bifida occulta diagnosis indicator	The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22479	C22479	Spinal cord tethered lipoma indicator	The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22480	C22480	Spinal cord tethered myelomeningocele indicator	The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22476	C22476	Spinal cord tethered none indicator	The indicator related to not having the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22481	C22481	Spinal cord tethered thick filum indicator	The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2183-C22502	C22502	Spinal deformity indicator	The indicator related to a new spinal deformity or progression of an existing deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22507	C22507	Spinal deformity stabilization indicator	The indicator related to the surgical stabilization of spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22508	C22508	Spinal deformity stabilization text	The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56994	C56994	Spinal percussion local pain text	Text field related to the spinal percussion local pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2159-C22261	C22261	Spine range of motion Lhermitte's sign evoke type	The type of range of motion in which Lhermitte's sign was evoked in the patient's spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22259	C22259	Spine range of motion flexion degree value	The value in degrees related to range in motion of neck flexion (60) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22257	C22257	Spine range of motion neck extension degree value	The value in degrees related to range in motion of neck extension (50) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22256	C22256	Spine range of motion neck left rotation degree value	The value in degrees related to range in motion of neck to the left (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22255	C22255	Spine range of motion neck right rotation degree value	The value in degrees related to range in motion of neck to the right (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.