CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 651 - 675 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2145-C21792	C21792	Cutaneous stigma absent text	The free text field related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2161-C22278	C22278	Surgical procedure complications type	The type of complication(s) that have occurred as related to the surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2155-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22483	C22483	Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator	The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2158-C22531	C22531	Shunt valve surgical site status	Shunt valve surgical site status	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2194-C56977	C56977	Trigger point type	Type of trigger points	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2153-C22043	C22043	Motor strength testing right hamstring scale	The amount of movement in the right hamstring	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22378	C22378	Chiari malformation tethered spinal cord urinate incomplete indicator	The indicator related to incomplete urination	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2148-C21836	C21836	Headache temporal association score	The score related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2146-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22292	C22292	Chiari malformation associate problem diagnosis type	The type related to any associated problems found at the patient's diagnosis of Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2155-C22270	C22270	Reflex deep tendon reflex adductor response score	The response score related to deep tendon reflex testing of adductor (obturator:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22491	C22491	Cranioplasty cerebelloplasty performed type	The type of cranioplasty/cerebelloplasty (if any) performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2158-C22541	C22541	Shunt valve reservoir refill lying duration	Time to refill after compression, with the subject/participant lying down	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2194-C56985	C56985	Stair climbing difficulty type	The difficulty the participant/subject has when climbing stairs	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2153-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22454	C22454	Pseudotumor papilledema family history condition indicator	The indicator related to personal or family history of pseudotumors or papilledema	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22386	C22386	Chiari malformation tethered spinal cord restless leg syndrome indicator	The indicator related to restless leg syndrome	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2152-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2172-C21747	C21747	Imaging posterior cranial fossa supraoccipital length measurement	The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2156-C22770	C22770	Need urinate multiple times while sleep indicator	Indicator of whether the patient/participant experiences the need to urinate more than once while sleeping	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C55659	C55659	Cervical posture type	The type as related to cervical posture	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2152-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21690	C21690	Chiari I malformation headache pressure daily occurrence indicator	Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2157-C22225	C22225	Sensory abnormal tingling pain indicator	The indicator related to abnormal tingling pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.