CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 601 - 625 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22575 Surgical procedure performed date

Date the surgical procedure was performed on the subject

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C21739 Imaging posterior cranial fossa pB-C2 measurement

The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra

 Supplemental Chiari I Malformation Imaging False Chiari I Malformation Chiari I Malformation
C22535 Shunt valve in place indicator

Shunt valve currenting in place

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

 Supplemental Medications (Prior and Current) False Chiari I Malformation Chiari I Malformation
C22302 Chiari malformation headache onset important symptom scale

The scale as related to headache at onset importance in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C21747 Imaging posterior cranial fossa supraoccipital length measurement

The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI

 Supplemental Chiari I Malformation Imaging False Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22500 Surgical procedure wound revision requirement six month indicator

The indicator related to a surgical wound revision required at 6 months post Chiari decompression

 Supplemental Chiari I Malformation Treatment False Chiari I Malformation Chiari I Malformation
C19256 Study protocol name

Name of study protocol

 Supplemental Chiari I Malformation Presentation Exam False Chiari I Malformation Chiari I Malformation
C22724 Speech difficulty indicator

Indicator of whether the patient/participant has difficulty with speech

 Supplemental Self - Report Testing (On Intake) False Chiari I Malformation Chiari I Malformation
C22214 Chiari malformation neurological examination abdominal reflex present indicator

The indicator related to abdominal reflexes being present

 Supplemental Neurological Exam False Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) False Chiari I Malformation Chiari I Malformation
C22508 Spinal deformity stabilization text

The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity

 Supplemental Chiari I Malformation Treatment False Chiari I Malformation Chiari I Malformation
C22258 Reflex deep tendon reflex triceps response score

The response score related to deep tendon reflex testing of triceps (radial:c7-8)

 Supplemental Chiari I Malformation Presentation Exam False Chiari I Malformation Chiari I Malformation
C55641 Neck Disability Index - Concentration

The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index

 Supplemental Neck Disability Index (NDI) False Chiari I Malformation Chiari I Malformation
C22772 Precipitating cause test type

Type of test(s) performed to identify the precipitating cause of the neurological disorder

 Supplemental Self - Report Testing (On Intake) False Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Allergy False Chiari I Malformation Chiari I Malformation
C22213 Reflex deep tendon reflex jaw response score

The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)

 Supplemental Reflex Testing False Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

 Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) False Chiari I Malformation Chiari I Malformation
C22044 Motor strength testing atrophy indicator

The indicator relating to atrophy in a muscle

 Supplemental Motor Strength Testing False Chiari I Malformation Chiari I Malformation
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental General Exam False Chiari I Malformation Chiari I Malformation
C22227 Sensory abnormal burning pain indicator

The indicator related to abnormal burning pain

 Supplemental Sensory Symptoms False Chiari I Malformation Chiari I Malformation
C22460 Suboccipital craniectomy size left right measurement range

The range of measurement related to the size of the suboccipital craniectomy left or right

 Supplemental Chiari I Malformation Treatment False Chiari I Malformation Chiari I Malformation
C56970 Muscle spasm type

Type of muscle spasm

 Supplemental Provocative-Other Testing False Chiari I Malformation Chiari I Malformation
Displaying 601 - 625 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.