CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 576 - 600 of 861
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22025 Motor strength testing iliopsoas right scale

The amount of movement in the right iliopsoas

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22734 Skin change indicator

Indicator of whether the patient/participant has experienced a skin change

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21702 Coordination stance assessment scale

The scale related to assessment of way someone stands

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C22345 Chiari malformation brain fog onset symptom severity scale

The scale as related to brain fog at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21675 Allergy medication name

Name related to the medication causing allergic reaction

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22462 Cervical laminotomy indicator

The indicator related to cervical laminotomy performed

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22742 Excessive urination frequency indicator

Indicator of whether the patient/participant's urination frequency has been excessive

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21710 Coordination heel to shin left lower extremity assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21931 Dizziness motion related indicator

The indicator related to motion related dizziness

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22366 Chiari malformation tethered spinal cord urine hold trouble indicator

The indicator related to trouble holding your urine

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21839 Headache pain relief factor type

The type as related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Chiari I Malformation Chiari I Malformation
C22526 Shunt valve type

Type of Shunt Valve

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22040 Motor strength testing intrinsic right hand scale

The amount of movement in the intrinsic muscles of the right hand

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55646 Eye convergence retraction indicator

The indicator related to eye convergence and retraction

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22521 Assessment pre surgical procedure date

Date of the patient's pre-surgery evaluation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22538 Shunt valve reservoir refill sit time

Shunt valve reservoir refill sitting time

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22048 Motor strength testing left ankle df scale

The amount of movement in the left ankle df

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22311 Chiari malformation imbalance dizziness onset important symptom scale

The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21750 Imaging posterior cranial fossa tentorial angle measurement

The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22255 Spine range of motion neck right rotation degree value

The value in degrees related to range in motion of neck to the right (80) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
Displaying 576 - 600 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.