CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 551 - 575 of 855
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21923 Balance unsteady stand walk indicator

The indicator related to feelings of unsteadiness when standing or walking

 Supplemental Imbalance False Chiari I Malformation Chiari I Malformation
C22360 Assessment post surgical procedure date

Date related to post operative evaluation

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22260 Reflex deep tendon reflex brachioradialis response score

The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)

 Supplemental Chiari I Malformation Presentation Exam False Chiari I Malformation Chiari I Malformation
C55642 Neck Disability Index - work indicator

The work pain indicator of the subject/participant as part of the Neck Disability Index

 Supplemental Neck Disability Index (NDI) False Chiari I Malformation Chiari I Malformation
C22773 Precipitating cause test date

Date on which the selected Precipitating Cause Test Type was performed

 Supplemental Self - Report Testing (On Intake) False Chiari I Malformation Chiari I Malformation
C22478 Attention deficit hyperactivity disorder indicator

The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)

 Supplemental Co-Morbidities False Chiari I Malformation Chiari I Malformation
C56962 Cervical extraction type

Type of cervical extraction (sitting)

 Supplemental Provocative-Other Testing False Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

 Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) False Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental General Exam False Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Chiari I Malformation Chiari I Malformation
C05454 Hypertension indicator

Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age

 Supplemental Past History (on intake) False Chiari I Malformation Chiari I Malformation
C22228 Sensory abnormal dull ache pain indicator

The indicator related to abnormal dull ache pain

 Supplemental Sensory Symptoms False Chiari I Malformation Chiari I Malformation
C22461 Cervical laminectomy anatomic site

The anatomic site or location related to the cervical laminectomy

 Supplemental Chiari I Malformation Treatment False Chiari I Malformation Chiari I Malformation
C56971 Phalens sign positive side type

The side of the body that the participant/subject's Phalen's signs read positive

 Supplemental Provocative-Other Testing False Chiari I Malformation Chiari I Malformation
C22741 Urination initiation difficulty indicator

Indicator of whether the patient/participant has experienced difficulty initiating urination

 Supplemental Self - Report Testing (On Intake) False Chiari I Malformation Chiari I Malformation
C21761 Chiari malformation screening hypermobility family indicator

The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation

 Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) False Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental CMI - Tethered Cord Screening False Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

 Supplemental General Exam False Chiari I Malformation Chiari I Malformation
C22103 Modified Ashworth Scale - Limb tone testing left hip scale

The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Chiari I Malformation Chiari I Malformation
C19779 Medical history asthma pulmonary assessment indicator

Indicator of history of asthma

 Supplemental Past History (on intake) False Chiari I Malformation Chiari I Malformation
C22485 Chiari decompression intradural adjunct fourth ventricle stent indicator

The indicator related to the addition of a fourth ventricle stent

 Supplemental Chiari I Malformation Treatment False Chiari I Malformation Chiari I Malformation
C56979 Knee patella exam result type

The result of the participant/subject's knee/patella exam

 Supplemental Provocative-Other Testing False Chiari I Malformation Chiari I Malformation
C22749 Irritable bowel syndrome diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with Irritable Bowel Syndrome (IBS)

 Supplemental Self - Report Testing (On Intake) False Chiari I Malformation Chiari I Malformation
C21773 Chiari malformation screening chronic edema varicose vein fatty skin tumor diagnosis indicator

The indicator related to fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling) in a screening diagnosis for Chiari malformation

 Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) False Chiari I Malformation Chiari I Malformation
C22380 Chiari malformation tethered spinal cord past urodynamic test indicator

The indicator related to past urodynamic testing

 Supplemental CMI - Tethered Cord Screening False Chiari I Malformation Chiari I Malformation
Displaying 551 - 575 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.