CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22458 Birth delivery anesthesia type

The type of anesthesia used to deliver the offspring

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22417 Birth delivery breech indicator

The indicator related to birth presentation at delivery being a breech birth

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22419 Birth delivery Caesarian section indicator

The indicator related to birth presentation at delivery being a Caesarian section

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22418 Birth delivery forceps use indicator

The indicator related to birth presentation at delivery requiring the use of forceps

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22416 Birth delivery normal indicator

The indicator related to birth presentation at delivery being normal

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Chiari I Malformation Chiari I Malformation
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22767 Bleeding clotting disorder indicator

Indicator of whether the patient/participant has ever had a bleeding or blood clotting disorder

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22492 Blood estimate loss measurement

The measurement related to the estimated amount of blood loss

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22430 Brain injury unspecified indicator

The indicator relating to any unspecified brain injuries the subject has had

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22727 Breath shortness indicator

Indicator of whether the patient/participant has experienced shortness of breath

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 51 - 75 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.