CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 476 - 500 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22302 Chiari malformation headache onset important symptom scale

The scale as related to headache at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21747 Imaging posterior cranial fossa supraoccipital length measurement

The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21765 Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator

The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22176 Chiari malformation neurological examination alert orient indicator

The indicator related to patient being alert and oriented to person, place and time

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22500 Surgical procedure wound revision requirement six month indicator

The indicator related to a surgical wound revision required at 6 months post Chiari decompression

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C19256 Study protocol name

Name of study protocol

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22724 Speech difficulty indicator

Indicator of whether the patient/participant has difficulty with speech

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21876 Surgical history pacemaker indicator

The indicator related to surgical history of a pacemaker

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22258 Reflex deep tendon reflex triceps response score

The response score related to deep tendon reflex testing of triceps (radial:c7-8)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55641 Neck Disability Index - Concentration

The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22772 Precipitating cause test type

Type of test(s) performed to identify the precipitating cause of the neurological disorder

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22710 Medication prior or concomitant dose frequency other text

The free-text field related to 'Medication prior or concomitant dose frequency' specifying other text. Dosing frequency for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C22460 Suboccipital craniectomy size left right measurement range

The range of measurement related to the size of the suboccipital craniectomy left or right

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56970 Muscle spasm type

Type of muscle spasm

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22740 Urination urge control difficulty indicator

Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21925 Balance falls frequency

The frequency as related to falls

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22358 Chiari malformation identify specialty diagnosis type text

The free text field related to identifying the specialty of the individual responsible for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22484 Chiari decompression verification decompression lateral cervicomedullary junction cranial spinal nerve rootlet indicator

The indicator related to the verification of decompression within the lateral cervicomedullary junction/cranial or spinal nerve rootlets

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22748 Occasional bowel incontinence current indicator

Indicator of whether the patient/participant currently experiences occasional bowel incontinence

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22058 Modified Ashworth Scale - Limb tone testing right shoulder scale

The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22379 Chiari malformation tethered spinal cord reoccur bladder kidney indicator

The indicator related to recurring urinary bladder or kidney infection

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
Displaying 476 - 500 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.