CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 426 - 450 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21768 Carotid radial pulse intact indicator

The indicator related to an intact carotid and radial pulse

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22334 Chiari malformation numbness tingling onset symptom severity scale

The scale as related to numbness/tingling at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C58515 Greatest transverse spinal cord diameter measurement

Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22197 Chiari malformation neurological examination corneal reflex present indicator

The indicator related to corneal reflexes being present

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22262 Reflex deep tendon reflex finger flexor response score

The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21787 Scoliosis text

The free text field related to identifying scoliosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56986 Trigger point trapezius type

Type of trapezius trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C21834 Headache symptom association score

The score related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22209 Chiari malformation neurological examination muscle strength bulk intact indicator

The indicator related to muscle strength and bulk being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22033 Motor strength testing right gluteus scale

The amount of movement in the right gluteus

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22254 Surgical procedure trigger point anatomic site

The anatomic site as related to trigger points in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22219 Chiari malformation neurological examination sensation intact indicator

The indicator related to sensation being intact to touch, vibration, position sense, pin and temperature

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21735 Imaging syrinx lowest level spinal segment number

The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22527 Shunt valve other text

The free-text related to shunt valve; specifying other text

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22041 Motor strength testing left quadricep scale

The amount of movement in the left quadricep

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C55641 Neck Disability Index - Concentration

The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22752 Sex decreased interest indicator

Indicator of whether the patient/participant has experienced decreased interest in sex

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22100 Modified Ashworth Scale - Limb tone testing right hip scale

The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22383 Chiari malformation tethered spinal cord loss sexual intercourse ability indicator

The indicator related to the loss of ability to perform physiological sexual functions

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
Displaying 426 - 450 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.