CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 401 - 425 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21887 Injury whiplash indicator

The indicator relating to injury in the form of whiplash

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22745 Interstitial cystitis diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with interstitial cystitis

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22768 Irregular menstrual period indicator

Indicator of whether the patient/participant has irregular menstrual periods

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22761 Irritability indicator

Indicator of whether the patient/participant is experiencing or exhibits irritability

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22749 Irritable bowel syndrome diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with Irritable Bowel Syndrome (IBS)

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22764 Joint hypermobility indicator

Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21793 Joint mobility normal indicator

The indicator related to normal joint mobility

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56966 Jugular compression type

Type of jugular compression

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21726 Karnofsky modified performance status score

Score identifying current level of functioning favoring the highest level estimate

Supplemental Functional Status Karnofsky Score Chiari I Malformation Chiari I Malformation
C22452 Klippel Feil Anomaly diagnosis indicator

The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C56979 Knee patella exam result type

The result of the participant/subject's knee/patella exam

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22457 Labor duration

The duration of the mother's labor, in hours

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C21727 Lansky modified performance status score

Score that best identifies your child's current level of functioning favoring the highest level estimate

Supplemental Functional Status Lansky Score Chiari I Malformation Chiari I Malformation
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22712 Light sensitivity indicator

Indicator of whether the patient/participant is sensitive to light

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21796 Limb length discrepancy absent indicator

The indicator related to limb length discrepancy absence

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22758 Long-term memory loss indicator

Indicator of whether the patient/participant is experiencing a decline in long-term memory

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C56988 Lumbar posture type

Type of lumbar posture

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22446 Malar hypoplasia condition indicator

The indicator related to the condition of malar hypoplasia, in which the subject has an underdeveloped maxilla

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Chiari I Malformation Chiari I Malformation
C22428 Material infection condition indicator

The indicator related to the condition of a maternal infection developing during pregnancy

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 401 - 425 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.