CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 376 - 400 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2146-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22041	C22041	Motor strength testing left quadricep scale	The amount of movement in the left quadricep	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2149-C18793	C18793	Medical history condition other text	The free-text field related to 'Medical history condition type', specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2183-C22496	C22496	Surgical procedure wound revision requirement indicator	The indicator related to whether surgical wound revision was required	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56990	C56990	Heel walking weakness type	Type of heel walking weakness	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22760	C22760	Word selection anomia indicator	Indicator of whether the patient/participant is experiencing or exhibits problems with recalling words	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22459	C22459	Medical history Menieres disease indicator	The indicator related to medical history of Meniere's disease, an inner ear disease that causes vertigo, hearing problems, and a ringing sound in the ear	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C10709	C10709	Walking assistive device indicator	Indicator of whether the participant/subject uses an assistive device for walking	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22720	C22720	Tremor indicator	Indicator of whether the patient/participant has tremors	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2183-C22504	C22504	Cervical fusion indicator	The indicator related to cervical fusion	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2272-C55637	C55637	Neck Disability Index - Personal care indicator	The pain indicator of personal care as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22768	C22768	Irregular menstrual period indicator	Indicator of whether the patient/participant has irregular menstrual periods	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22473	C22473	Anemia condition indicator	The indicator related to the blood condition anemia	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C18035	C18035	Medication prior name	Name of the prior/concomitant agent or drug administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22728	C22728	Frequent nausea indicator	Indicator of whether the patient/participant has experienced frequent nausea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22270	C22270	Reflex deep tendon reflex adductor response score	The response score related to deep tendon reflex testing of adductor (obturator:l2-4)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55645	C55645	Neck Disability Index - recreation indicator	The recreation indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2157-C22222	C22222	Sensory pain temperature deficit indicator	The indicator related to a sensory deficit related to pain and/or temperature	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2153-C22027	C22027	Motor strength testing left deltoid scale	The amount of movement in the left deltoid muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56966	C56966	Jugular compression type	Type of jugular compression	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation

Displaying 376 - 400 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.