CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22372	C22372	Imaging pre surgical procedure date	Date of pre-surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22373	C22373	Imaging pre surgical procedure type	Type of pre-surgical imaging	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21752	C21752	Imaging spine anomaly atlas assimilation present indicator	The indicator related to the atlas assimilation on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21751	C21751	Imaging spine anomaly congenital fusion cervical vertebrae present indicator	The indicator related to the congenital fusion of cervical vertebrate on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21753	C21753	Imaging spine anomaly other craniocervical present indicator	The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21755	C21755	Imaging spine anomaly spinal dysraphism present indicator	In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21754	C21754	Imaging spine anomaly tethered cord present indicator	The indicator related to presence of tethered cord on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21734	C21734	Imaging syrinx highest level spinal segment number	The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21733	C21733	Imaging syrinx length spinal segment count	The number of spinal segments for length of syrinx as measure on sagittal MRI scan	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21735	C21735	Imaging syrinx lowest level spinal segment number	The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21732	C21732	Imaging syrinx present indicator	The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging	Supplemental-Highly Recommended	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21736	C21736	Imaging syrinx width measurement	Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2156-C22743	C22743	Inability empty bladder single attempt indicator	Indicator of whether the patient/participant is unable to empty his or her bladder in a single urination attempt	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22759	C22759	Indecisiveness indicator	Indicator of whether the patient/participant is experiencing or exhibits difficulty making decisions	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22436	C22436	Inferior vena caval pressure abnormality indicator	The indicator related to the presence of any abnormality in the value of the subject's inferior vena caval (IVC) pressure	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2148-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2149-C21888	C21888	Injury fall head neck indicator	The indicator relating to injury in the form of the patient falling on their head or neck	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21886	C21886	Injury Head Indicator	The indicator relating to traumatic head injury	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2149-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22745	C22745	Interstitial cystitis diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with interstitial cystitis	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22768	C22768	Irregular menstrual period indicator	Indicator of whether the patient/participant has irregular menstrual periods	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22761	C22761	Irritability indicator	Indicator of whether the patient/participant is experiencing or exhibits irritability	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22749	C22749	Irritable bowel syndrome diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Irritable Bowel Syndrome (IBS)	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22764	C22764	Joint hypermobility indicator	Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.